Evidence map›Paper›PMID 36484883›Full record

ArticleJournal of patient-reported outcomes2022

Development of a set of patient reported outcome measures for patients with benign liver tumours and cysts: patient focus groups and systematic review.

Alicia Furumaya, Lynn E Nooijen, Martijn P D Haring, Hedy A van Oers, Marlou van Beneden, Belle V van Rosmalen, R Bart Takkenberg, Geert Kazemier, Marc G Besselink, Vincent E de Meijer and 2 more

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Article in Journal of patient-reported outcomes, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

12 authors.

Alicia Furumaya *Department of Surgery, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.ORCID http://orcid.org/0000-0001-5897-0438
Lynn E Nooijen *Department of Surgery, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Martijn P D HaringDepartment of Surgery, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
Hedy A van OersChild and Adolescent Psychiatry and Psychosocial Care, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Marlou van BenedenDepartment of Strategy and Policy and Care Support, Amsterdam UMC location Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Belle V van RosmalenDepartment of Surgery, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
R Bart TakkenbergAmsterdam Gastroenterology Endocrinology Metabolism, Amsterdam, The Netherlands.
Geert KazemierDepartment of Surgery, Amsterdam UMC location Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
Marc G BesselinkDepartment of Surgery, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands.
Vincent E de MeijerDepartment of Surgery, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
Joris I ErdmannDepartment of Surgery, Amsterdam UMC location University of Amsterdam, Amsterdam, The Netherlands. j.i.erdmann@amsterdamumc.nl.
Dutch Benign Liver Tumor Group

Funding

Amsterdam University Medical Centers Personal grant
6 · The paper itself

Abstract

backgroundPatient reported outcome measures (PROMs) may be useful for patients with benign liver tumours and cysts (BLTC) to evaluate the impact of treatment and/or guide shared decision making. Yet, a set of PROMs relevant to patients with BLTC is currently unavailable. In this study, we selected a PROMs set for patients with BLTC.

methodsPotentially relevant patient reported outcomes (PROs) were selected by psychologist-researchers based on keywords used or suggested by participants of two virtual focus groups meetings consisting of thirteen female BLTC patients with a median age of 50 years. Subsequently, patients were asked to report their most relevant PROs. PROMs identified by systematic literature review and computerized adaptive tests (CATs) in the Patient-Reported Outcomes Measurement Information System (PROMIS) were considered in selecting the final PROMs set to assess relevant outcomes.

resultsThe most important PROs were: insecurity/anxiety (11/12 patients), pain (9/12 patients), fatigue (8/12 patients), and limitations in daily life (5/12 patients). The literature review included 23 studies, which used various generic and disease-specific PROMs, often not measuring (all) relevant PROs. The final selected PROMs set included numerical rating scales for pain, two questions on overall health and quality of life and four PROMIS CATs.

conclusionsA PROMs set generically and efficiently measuring outcomes relevant for patients with BLTC was developed and may be used in future research and clinical practice.

Indexed as

Benign liver tumoursPatient reported outcomesSymptoms

Identifiers

PMID36484883
PMCPMC9733760

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