ArticlePalliative care and social practice2022
The Compassionate Communities Connectors model for end-of-life care: implementation and evaluation.
Article in Palliative care and social practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 24 citations in OpenAlex.
- Key themes and approaches in palliative and end-of-life care education for the general public: a systematic review.BMC palliative care · 2025Pooled it
- Patient and family perspectives on rural palliative care models: A systematic review and meta-synthesis.Palliative medicine · 2024Pooled it
- Advance Care Planning for Children With Rare Diseases: A Pilot RCT.Pediatrics · 2024Trial
- Palliative medicine in 2050: how will people live the last part of life?Future healthcare journal · 2026Article
- Mapping death literacy in the East of England: A cross-sectional survey with qualitative insights to inform public health strategy.Palliative care and social practice · 2026Article
- Taboo, safe spaces, and death sociability: A comparative ethnography of two compassionate communities.Palliative care and social practice · 2026Article
- Shifting the aged care culture from caring "for" residents to caring "about" residents: Advocating for a compassionate communities approach to care.Palliative care and social practice · 2026Article
- Compassionate communities, Māori ageing and end-of-life: A systematic review.Palliative care and social practice · 2026Review
- Development of the 'Attentive Visitors' workshop supporting community volunteers in their palliative care signposting role.Public health in practice (Oxford, England) · 2025Article
- Article
- Volunteer navigators to support people with life-limiting illness in the community.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025Article
- Social support sources for people with palliative care needs at home: a scoping review.BMC palliative care · 2025Article
- Connecting communities across the globe: Atlas protocol.Palliative care and social practice · 2025Article
- What knowledge and skills are needed for community volunteers to take on a signposting role in community-based palliative care? A qualitative study.Palliative care and social practice · 2025Article
- Demystifying Compassionate Communities.Palliative care and social practice · 2025Article
- Community readiness to address disparities in access to cancer, palliative and end-of-life care for ethnic minorities.BMC public health · 2024Article
- Willingness to support neighbours practically or emotionally: a cross-sectional survey among the general public.Palliative care and social practice · 2024Article
- Compassionate engagement of communities in support of palliative and end-of-life care: challenges in post-pandemic era.Frontiers in medicine · 2024Article
- Using the Carers' Alert Thermometer tool to identify needs and support family caregivers of people with motor neurone disease: moving beyond needs assessments.Palliative care and social practice · 2024Article
- Palliative and End-of-Life Care for People Living with Motor Neurone Disease: Ongoing Challenges and Necessity for Shifting Directions.Brain sciences · 2023Article
Corrections and comments
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Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objectives: This pilot project aimed to develop, implement and evaluate a model of care delivered by community volunteers, called Compassionate Communities Connectors. The Connectors' principal task was to support people living with advanced life-limiting illnesses or palliative care needs by enhancing their supportive networks with Caring Helpers enlisted from the local community. Methods: The project was undertaken in Western Australia, 2020-2022. A mixed methods research design incorporated a prospective cohort longitudinal design with two cross-sectional measurements, pre- and post-intervention. The primary outcome was the effect of the intervention on social connectedness. Secondary outcomes were the effect of the intervention on unmet practical or social needs and support from social networks, and the self-reported impact of the programme on social wellbeing such as coping with daily activities, access to formal services, community links, social activity and reducing social isolation. Results: Twenty Connectors were trained but 13 participated; 43 patients participated but 30 completed the study. Over half of these patients lived alone and 80% of their needs were in the social domain. There were significant improvements in social connectedness, reflected in reduced social isolation, better coping with daily activities and a two-fold increase in supportive networks. The programme was able to address gaps that formal services could not, particularly for people who lived alone, or were socially isolated in more rural communities that are out of the frequent reach of formal services. Conclusions: This project led to an ongoing programme that has been incorporated by the health service as 'business as usual', demonstrating rapid translation into practice. It has laid solid grounds for community capacity building with successful measurable outcomes in line with reports on similar programmes. Ongoing work is focused on replication in other communities to help them establish a similar model of care that better integrates formal and informal networks.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.