ArticleClinical pediatrics2023
The Experience of Parental Caregiving for Children With Medical Complexity.
Article in Clinical pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed.
- Medication Management and Caregiving Stress or Benefit in Children with Medical Complexity.Journal of pediatrics. Clinical practice · 2026Article
- Home-Based Parenting Strategies and Challenges of Primary Parental Caregivers of Children With Medical Complexity in Japan: A Qualitative Study.Child: care, health and development · 2026Article
- The impact of the Indiana Complex Care Coordination Collaborative (IC4) on caregivers of children with complex medical conditions.BMC pediatrics · 2026Article
- Associations of Environmental Modifications and Collaborative Care Environments with Positive Health in Families of Children with Medical Complexity: A Secondary Analysis.Nursing reports (Pavia, Italy) · 2026Article
- Life-Sustaining Treatment Decisions and Parent Caregiving Experiences for Children With Medical Complexity.JAMA network open · 2026Article
- Do Rural-Urban Disparities Translate into Nursing Complexity at Hospital Admission? Evidence from a Single Tertiary-Care Pediatric Hospital in Italy.Children (Basel, Switzerland) · 2026Article
- Insights From Wise Warriors: A Needs Assessment and Preventive Parenting Program Recommendations From Parents of Children With Spinal Muscular Atrophy.Journal of child neurology · 2026Article
- Quality of Life and Mental Health Among Families Caring for Children with Medical Complexity: A Scoping Review.Healthcare (Basel, Switzerland) · 2026Review
- Shared Decision-Making for Children with Medical Complexity and Their Caregivers in the Perioperative Time.Pediatric clinics of North America · 2026Review
- "Rolling the Boulder Up the Hill": A Qualitative Study of Parents' Experiences Providing Ongoing Care at Home for Their Child with Complex Medical Needs.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026Article
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- What Does Family-Centered Care Mean to You? A Qualitative Study Examining Perceptions of Mothers of Children With Medical Complexity.Journal of family nursing · 2026Article
- Caregiver burden in children with medical complexity: an approach based on the identification of associated factors.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2026Article
- Effect of Isolation On Mental Health Profiles of Caregivers of Children with Medical Complexity: A Mixed Methods Embedded Case Study.International journal of pediatrics · 2026Article
- Emotional impact, burnout, and isolation among primary family caregivers of children with medical complexity.Families, systems & health : the journal of collaborative family healthcare · 2025Article
- Examining the mediating role of intrinsic motivation in Laissez-Faire leadership and nurses' task performance: a cross-sectional study.BMC nursing · 2025Article
- A Mediation Analysis of Trauma Symptoms on the Well-Being in Caregivers of Children with Medical Complexity.Healthcare (Basel, Switzerland) · 2025Article
- Article
- A Qualitative Study of CMC Caregivers' Perspectives about their Emotional Well-Being.Journal of pain and symptom management · 2025Article
- Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation.Hospital pediatrics · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Children with medical complexity (CMC) have complex chronic conditions with significant functional impairment, contributing to high caregiving demand. This study seeks to explore impacts of parental caregiving for CMC. Fifteen caregivers of CMC followed at a tertiary care hospital participated in semi-structured interviews. Interviews were concurrently analyzed using a qualitative description framework until thematic saturation was reached. Codes were grouped by shared concepts to clarify emergent findings. Four affected domains of parental caregiver experience with associated subthemes (in parentheses) were identified: personal (identity, physical health, mental health), family (marriage, siblings, family quality of life), social (time limitations, isolating lived experience), and financial (employment, medical costs, accessibility costs). Despite substantial challenges, caregivers identified two core determinants of personal resilience: others' support (hands-on, interpersonal, informational, material) and a positive outlook (self-efficacy, self-compassion, reframing expectations). Further research is needed to understand the unique needs and strengths of caregivers for this vulnerable population.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.