ArticleAutism research : official journal of the International Society for Autism Research2023
Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation.
Article in Autism research : official journal of the International Society for Autism Research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 78 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
78 citing papers in PubMed, 2 syntheses or guidelines pooled it, 169 citations in OpenAlex.
- Outcomes of Experiencing Interpersonal Violence in Autism: A Mixed Methods Systematic Review and Meta-Analysis.Trauma, violence & abuse · 2026Pooled it
- How are Autistic People Involved in the Design of Extended Reality Technologies? A Systematic Literature Review.Journal of autism and developmental disorders · 2024Pooled it
- Discrimination in autism as measured by minimal group and sheer difference experiments.British journal of psychology (London, England : 1953) · 2026Article
- English-Language Autism Terminology Preferences of Autistic People and their Parents in the United States: Clustering Illuminates Diverse Views.Autism : the international journal of research and practice · 2026Article
- Relation Between Genotype and Behavioral Phenotype in Children and Adolescents With Neurofibromatosis Type 1.JAACAP open · 2026Article
- Reasonable to Whom? Rethinking Informed Consent Disclosures in Light of the Research Related Concerns of the Autistic Community.The American journal of bioethics : AJOB · 2026Article
- Autism Terminology Preferences Among Autistic and Non-Autistic Adults in North America.Autism in adulthood · 2026Article
- Domain-specific perceptual grouping of human dyads: evidence from autistic trait profiles.Scientific reports · 2026Article
- The conceptual landscape of self-regulation in neurodevelopmental conditions: an overview of reviews.Nature human behaviour · 2026Review
- Beyond the Outburst: Charting a New Frontier for Understanding and Treating Irritability in Autistic Adults.Autism research : official journal of the International Society for Autism Research · 2026Review
- Perspectives of Autistic People, Parents, and Healthcare Professionals on Communication in Healthcare Settings and Related Needs in Georgia: A Qualitative Study.Journal of autism and developmental disorders · 2026Article
- A Multimodal Investigation of Flexibility and Socialization in Autistic Children With and Without ADHD.Journal of autism and developmental disorders · 2026Article
- A Concurrent Validity Study of the Mullen Scales of Early Learning (MSEL) and the MacArthur-Bates Communicative Developmental Inventory (CDI) in Infants with an Elevated Likelihood or Diagnosis of Autism.Journal of autism and developmental disorders · 2026Article
- Autism Spectrum-Related Terms Preferred by Polish-Speaking Persons on the Autism Spectrum and Participants Without a Diagnosis of Autism Spectrum Conditions.Autism in adulthood · 2026Article
- "It has tentacles into every single aspect of me" a qualitative evidence synthesis of the lived experiences and perceptions of ADHD youth.European child & adolescent psychiatry · 2026Review
- Bridging Gaps: Enhancing Sleep and Health Disparities in Latino Families with Young Adults with Autism Using a Culturally Adapted Intervention.Journal of racial and ethnic health disparities · 2026Article
- Parental Acceptance and Understanding of Autistic Children (PAUACS) - an Instrument Development Study.Journal of autism and developmental disorders · 2026Article
- Environmental metal exposure and autism spectrum disorder: spatial analysis of exposure patterns and associated risk among children in Alabama.Environmental science and pollution research international · 2026Article
- The relationship between speed and curvature differs in autistic and non-autistic tracing movements.Scientific reports · 2026Article
- Exploring auditory perception experiences in daily situations in autistic adults.Autism : the international journal of research and practice · 2026Article
18 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 3 countries.
Funding
Abstract
Over the past two decades, there have been increasing discussions around which terms should be used to talk about autism. Whilst these discussions have largely revolved around the suitability of identity-first language and person-first language, more recently this debate has broadened to encompass other autism-related terminology (e.g., 'high-functioning'). To date, academic studies have not investigated the language preferences of autistic individuals outside of the United Kingdom or Australia, nor have they compared levels of endorsement across countries. Hence, the current study adopted a mixed-methods approach, employing both quantitative and qualitative techniques, to explore the linguistic preferences of 654 English-speaking autistic adults across the globe. Despite variation in levels of endorsement between countries, we found that the most popular terms were similar-the terms 'Autism', 'Autistic person', 'Is autistic', 'Neurological/Brain Difference', 'Differences', 'Challenges', 'Difficulties', 'Neurotypical people', and 'Neurotypicals' were consistently favored across countries. Despite relative consensus across groups, both our quantitative and qualitative data demonstrate that there is no universally accepted way to talk about autism. Our thematic analysis revealed the reasons underlying participants' preferences, generating six core themes, and illuminated an important guiding principle-to respect personal preferences. These findings have significant implications for informing practice, research and language policy worldwide.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.