Evidence map›Paper›PMID 36473404›Full record

ArticlePatient education and counseling2023

"I think people should be more aware:" Uterine fibroid experiences among women living in Indiana, USA.

Chandler Dykstra, Alfu Laily, Erica E Marsh, Monica L Kasting, Andrea L DeMaria

Open access · greenAbstract read
In one paragraph

Article in Patient education and counseling, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.5field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
  2. Women's Reproductive Health Conditions and Fertility Goals.Population research and policy review · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Chandler DykstraMarian University College of Osteopathic Medicine, Indianapolis, IN, USA. Electronic address: cdykstra415@marian.edu.
Alfu LailyDepartment of Public Health, Purdue University, West Lafayette, IN, USA. Electronic address: alaily@purdue.edu.
Erica E MarshDivision of Reproductive Endocrinology and Infertility, Department of Obstetrics and Gynecology, University of Michigan Medical School, Ann Arbor, MI, USA. Electronic address: marshee@med.umich.edu.
Monica L KastingDepartment of Public Health, Purdue University, West Lafayette, IN, USA. Electronic address: mlkastin@purdue.edu.
Andrea L DeMariaDepartment of Public Health, Purdue University, West Lafayette, IN, USA. Electronic address: ademaria@purdue.edu.
Purdue University West Lafayette · USMarian University - Indiana · USMichigan Medicine · US

Funding

Quality Assurance and Quality Control Project Management: Improving Submissions and Study Conduct in the Human Subjects Research Prior Approval ProcessUL1TR002529 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI MOE, SHARON M, WIEHE, SARAH ELIZABETH · 2018 to 2022
$27.2M
Translating Measures of Visual Experience to Children with Autism and Down SyndromeKL2TR002530 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI ROBB, SHERI L · 2018 to 2022
$4.8M
NCATS NIH HHS KL2 TR002530NCATS NIH HHS UL1 TR002529
6 · The paper itself

Abstract

objectiveTo understand healthcare experiences among patients with uterine fibroids (fibroids) across the continuum of care, from early symptoms through diagnosis, treatment, and management, while also investigating health disparities.

methodsWe conducted 20 semi-structured interviews with patients with fibroids. Interviews were transcribed verbatim and qualitatively analyzed using thematic analysis. Eligible participants were women aged 18 and over, residing within 75 miles of one of the two recruitment locations (Tippecanoe or Marion County) in Indiana, USA.

resultsWomen experienced myriad physical symptoms, which often manifested into psychological and sexual disturbances and infiltrated all aspects of daily life. Internet searches were frequently mentioned as their main information source. Fertility became a prominent factor in deciding treatment options. However, health disparities prevented some from receiving quality fibroids healthcare. Some women reported staying home during COVID-19 pandemic facilitated the management of physical symptoms. Overall, participants advocated for greater fibroids awareness and education.

conclusionResults highlight barriers and facilitators to fibroids-related decisions, behaviors, and outcomes. Translation of research to practice was guided by a combined Social-Ecological Model and social determinants of health framework for development of strategic interventions. PRACTICE IMPLICATIONS: Interventions should aim to improve fibroids healthcare access, education and awareness, and patient-provider communication for minority, rural, and low socioeconomic status communities disproportionately impacted by fibroids.

Indexed as

COVID-19LeiomyomaUterine NeoplasmsAdolescentAdultFemaleHumansIndianaPandemicsCareDiagnosisGynecologyHealthcare challengesObstetricsPatient experienceQualitativeTreatmentUterine fibroidsWomen’s health

Identifiers

PMID36473404
PMCPMC9808590
OpenAlexW4312083244

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.