Evidence map›Paper›PMID 36462917›Full record

ArticleJournal of aging studies2022

"You gotta have your cry": Administrator and direct care worker experiences of death in assisted living.

Alexis A Bender, Candace L Kemp, Ann E Vandenberg, Elisabeth O Burgess, Molly M Perkins

Open access · greenAbstract read
In one paragraph

Article in Journal of aging studies, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.3field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

  1. Article
  2. Article
  3. Bioethics in Gerontology: Developing a Typology of Ethical Issues in Assisted Living.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024
    Article
  4. Turning It Over to God: African American Assisted Living Residents' End-of-Life Preferences and Advance Care Planning.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Alexis A BenderEmory University, Atlanta, GA, USA. Electronic address: alexis.anne.bender@emory.edu.
Candace L KempGeorgia State University, Atlanta, GA, USA.
Ann E VandenbergEmory University, Atlanta, GA, USA.
Elisabeth O BurgessGeorgia State University, Atlanta, GA, USA.
Molly M PerkinsEmory University, Atlanta, GA, USA; Birmingham/Atlanta VA Geriatric Research, Education, and Clinical Center, USA.
Georgia State University · USEmory University · US

Funding

End-of-Life in Assisted Living: Links between Structure, Process, and OutcomesR01AG047408 · NIA · EMORY UNIVERSITY · PI PERKINS, MOLLY M · 2015 to 2019
$1.9M
NIA NIH HHS R01 AG047408
6 · The paper itself

Abstract

Assisted living (AL) is increasingly a site of end-of-life care and a long-term care location where growing numbers of people are aging in place and dying. Despite these trends, limited research focuses on how death and grief impact the work environment in AL. This grounded theory analysis examined qualitative data collected from 27 administrators and 38 direct care workers (DCWs) in 7 diverse settings. As assisted living administrators and DCWs experienced resident death, they engaged in a dynamic and individualized process of "managing the normalization of death," which refers to the balance of self-identity and workplace identity. The process of reconciling these opposing contexts in AL involved several individual- and community-level conditions. Administrators and DCWs would benefit from additional resources and training around death. Increasing collaboration with hospice and clarifying policies about death communication would better prepare the workforce to acknowledge the end of life in assisted living.

Indexed as

Independent LivingTerminal CareAgedHealth PersonnelHumansWorkforceWorkplaceEnd-of-life careFormal caregivingQualitative research

Identifiers

PMID36462917
PMCPMC9769282
OpenAlexW4296903801

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.