ArticleBMC palliative care2022
State-wide implementation of patient-reported outcome measures (PROMs) in specialized outpatient palliative care teams (ELSAH): A mixed-methods evaluation and implications for their sustainable use.
Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Implementing patient-centred outcome measures in palliative care clinical practice. An updated systematic review of facilitators and barriers.BMC palliative care · 2026Pooled it
- Implementation of patient-reported outcomes in personalized lung cancer care: a qualitative study from the perspective of patients and health care providers.Journal of patient-reported outcomes · 2026Article
- A scoping review of palliative care assessment tools.BMC palliative care · 2026Article
- Monitoring patients' symptom improvement in palliative care units using patient-reported outcomes: a multicenter prospective observational study.BMC palliative care · 2026Observational
- Process evaluation of a person-centred outcome measures-based quality improvement program in a hospital-based palliative care in mainland China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Healthcare professionals' perspectives on assessing selected patient-reported outcome measures in specialist palliative care institutions: a multi-country mixed-methods study.BMC palliative care · 2025Article
- Integration of Psychosocial Theory into Palliative Care: Implications for Care Planning and Early Palliative Care.Cancers · 2024Review
- Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care-a qualitative interview study.BMC palliative care · 2024Article
- Barriers and facilitators of electronic patient-reported outcome measures (e-PROMs) for patients in home palliative cancer care: a qualitative study of healthcare professionals' perceptions.BMC palliative care · 2023Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundSuch patient-reported outcome measures (PROMs) and patient-centered outcome measures as the Integrated Palliative Care Outcome Scale (IPOS), Phase of Illness, and IPOS Views on Care (IPOS VoC), facilitate patient-centered care and help improve quality. To ensure sustainability, implementation and usage should be adapted according to setting. When settings involve several distinct teams that differ in terms of views and working practices, it is more difficult to integrate outcome measures into daily care. The ELSAH study aimed to learn how health professionals working in specialized outpatient palliative care (SOPC) viewed the use of these outcome measures in daily care, and what they express is needed for successful sustainable, state-wide application.
methodsWe used a parallel mixed-methods design involving three focus groups (n = 14) and an online-survey based on normalization process theory (n = 76). Most participants were nurses and physicians from 19 SOPC-teams in Hesse, Germany. We used a triangulation protocol including convergence coding matrices to triangulate findings.
resultsThe majority of health professionals were able to integrate the outcome measures into their working lives and said that it had become a normal part of their day-to-day work. To ensure their sustainable integration into daily care, the motivation and concerns of health professionals should be taken into consideration. Health professionals must clearly recognize how the measures help improve daily care and quality evaluation.
conclusionsTo implement the outcome measures in a number of teams, it will be necessary to take individual team characteristics into account, because they influence motivation and concerncs. Further, it will be necessary to offer opportunities for them to engage in peer support and share information with other teams. The sustainable use of outcome measures in SOPC will require continuous support within each team as well as across teams. When several distinct teams are working in the same setting, a cross-team coordination unit can help to coordinate their work efficiently.
trial registrationGerman Clinical Trials Register DRKS-ID: DRKS00012421; www.germanctr.de/DRKS00012421.
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