ArticleArchives of disease in childhood2023
School lives of adolescent school students living with chronic physical health conditions: a qualitative evidence synthesis.
Article in Archives of disease in childhood, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measures of identity in adolescents/young adults with long-term physical health conditions: a systematic review.Journal of pediatric psychology · 2026Pooled it
- Reframing 'chronic conditions' in adolescent health: why terminology matters for person-centred and equitable care.Global health action · 2026Article
- Intervention Practices for Promoting Well-Being and Cognitive Development in Hospitalized Children: A Scoping Review.European journal of investigation in health, psychology and education · 2026Review
- Training Healthcare Assistants for School-Based Care of Children Receiving Paediatric Palliative Care: A Post-Training Evaluation.Children (Basel, Switzerland) · 2026Article
- I have the right to carry a backpack: access to the school of children and adolescents in paediatric palliative care in the Veneto Region (Italy).Italian journal of pediatrics · 2025Article
- Co-creating support for adolescents with long-lasting pain: findings from workshops with adolescents, parents, and professionals.BMC health services research · 2025Article
- Keeping Up With School During Hospitalization for Children With Chronic Illnesses, Siblings and Parents.Child: care, health and development · 2025Article
- Parents of Children and Young People With Long-Term Physical Health Conditions-Experiences of Navigating School.Child: care, health and development · 2025Article
- Chronic health conditions and school absence, exclusions, and non-enrolment: a cohort study using the Education and Child Health Insights from Linked Data database.Journal of public health (Oxford, England) · 2025Article
- Negotiating Access to Health and Wellbeing Support in Schools for Young People with Chronic Health Conditions in English Secondary Schools: A Qualitative Multi-Informant Study.Continuity in education · 2025Article
- Understanding what it is like to experience pain as you grow up: a poetic meta-ethnography.Pain · 2025Review
- Interdisciplinary intervention to improve mental health and academic adaptation of adolescents with chronic diseases: integration of educational psychology and public health.Frontiers in psychology · 2025Article
- Qualitative Study Examining Attendance for Secondary School Pupils With Long-Term Physical Health Conditions.Continuity in education · 2024Article
- Influencing Factors In-Hospital School Education: Exploring the Context From the Teacher's Perspective.Continuity in education · 2024Article
- The INSCHOOL project: showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions.Research involvement and engagement · 2023Article
- "It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.Health psychology openArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveAssess the existing evidence base in order to synthesise the current qualitative findings for the impact of chronic health conditions on the school lives of young people.
designQualitative evidence synthesis using thematic synthesis. PATIENTS: Young people aged 11-18 years with a chronic health condition from one of the following groups: oncology, cystic fibrosis, diabetes, asthma, rheumatology, neuromuscular, colorectal, chronic pain, allergies and dermatology. OUTCOME MEASURE: Qualitative findings and discussions present in included studies formed the data for the thematic synthesis.
resultsFrom a search identifying 19 311 records, a sample of 35 papers were included. The included papers represented 15 countries and primarily employed interviews as part of data collection. Thematic synthesis resulted in six themes: 'keeping up/catching up/missing out/looking forward'; 'identity'; 'relationship with peers'; 'normality and difference'; 'autonomy'; 'relationships with staff'.
conclusionsThematic synthesis highlighted the commonalities, rather than divergence, of issues for young people across different chronic conditions. Policies need to be based on the experiences of the people they aim to provide for, and while attendance and attainment remain important, there is clearly more that needs to be considered when gathering data, designing interventions and developing policies to support this population. It may also be advisable for clinical professionals to include the broader psychosocial aspects of school life in discussions and plans to support young people with long-term conditions. PROSPERO REGISTRATION NUMBER: CRD42021278153.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.