Evidence map›Paper›PMID 36458742›Full record

ArticleInternational journal of qualitative studies on health and well-being2023

Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson's or Multiple Sclerosis.

Anna M Carapellotti, Hannie J E M Meijerink, Christine Gravemaker-Scott, Lucia Thielman, Renée Kool, Natalie Lewin, Tineke A Abma

Open access · goldAbstract read
In one paragraph

Article in International journal of qualitative studies on health and well-being, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.0field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 7 citations in OpenAlex.

  1. Trial
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 2 countries.

Anna M CarapellottiSchool of Psychology, Queen's University Belfast, Belfast, UK.ORCID 0000-0001-6262-2516
Hannie J E M MeijerinkParkinson Vereniging, Bunnik, The Netherlands.
Christine Gravemaker-ScottIndependent Researcher, The Netherlands.
Lucia ThielmanLeyden Academy on Vitality and Ageing, Leiden, The Netherlands.
Renée KoolLAPS, Research Institute for Art and Public Space, Gerrit Rietveld Academy, Amsterdam, The Netherlands.
Natalie LewinIndependent Researcher, The Netherlands.
Tineke A AbmaLeyden Academy on Vitality and Ageing, Leiden, The Netherlands.ORCID 0000-0002-8902-322X
Gerrit Rietveld Academy · NLLeiden University · NLLeyden Academy on Vitality and Ageing · NLQueen's University Belfast · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe purpose of this study was to explore the lived experience of dancing with Parkinson's and Multiple Sclerosis in an inclusive dance group called ReDiscoverMe (RDM).

methodsParticipatory research approaches and interpretative phenomenological analysis were used to make sense of the lived experience captured in interviews and observations. Arthur Frank's conceptual framework on embodied storytelling from his book

findingsDancing in a nonjudgmental environment was described by participants as a way to rediscover themselves while continually adapting to living with chronic illness. We interpreted this experience of rediscovery as an active, recursive process involving three "movements": escaping, expanding, and embracing. Through these movements, participants could rise above the self and illness.

conclusionsThe lived experience of dancing in this group was characterized by transformations of the body, self, and life. Through escaping, expanding, and embracing, participants could more easily embrace the body's contingency, integrate the self and body by becoming dancers, connect with others living with illness, and produce desire through passion. Participants could therefore experience illness as a journey and gain something from the experience.

Indexed as

Multiple SclerosisParkinson DiseaseBooksCommunicationEmotionsHumanschronic illnessdanceinclusive dancelived experienceMultiple SclerosisParkinson’s diseaseparticipatory health research

Identifiers

PMID36458742
PMCPMC9721429
OpenAlexW4310779118

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.