ArticlePediatrics2023
Parent Perspectives on Sharing Pediatric Hospitalization Clinical Notes.
Article in Pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed.
- Does clinical documentation reflect how parents and clinicians share decisions about surgery?BMC medical informatics and decision making · 2026Article
- Parent Experiences Accessing Inpatient Clinical Notes on a Pediatric Oncology Service.Hospital pediatrics · 2026Article
- A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol.Journal of hospital medicine · 2025Article
- Does Clinical Documentation Reflect How Parents and Clinicians Share Decisions About Surgery?Research square · 2025Article
- Electronic Communication Between Children's Caregivers and Health Care Teams: Scoping Review on Parental Caregiver's Perceptions and Experience.JMIR pediatrics and parenting · 2024Article
- Perception of Physicians' Notes Among Parents of Different Health Literacy Levels.Hospital pediatrics · 2024Article
- Family Perception of OpenNotes in the Neonatal Intensive Care Unit.Applied clinical informatics · 2024Article
- Adolescent Access to Clinicians' Notes: Adolescent, Parent, and Clinician Perspectives.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2024Article
- Re-designing inpatient nursing notes shared with families: an opportunity to enhance family-centered care delivery.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act.Journal of the American Medical Informatics Association : JAMIA · 2023Article
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Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
BACKGROUND AND
objectivesFederal guidelines mandate that hospitals provide patients and caregivers with free, online access to their physician's clinical notes. This study sought to identify parent perceptions of the benefits and challenges of real-time note access during their child's hospitalization and strategies to optimize note-sharing at the bedside.
methodsThis qualitative study was conducted with parents of children aged <12 years admitted to a pediatric hospitalist service in April 2019. Parents were given access to their child's admission and daily progress notes on a bedside tablet (iPad), and interviewed upon discharge. In-depth, 60-minute interviews were audio-recorded and transcribed. Two researchers developed and refined a codebook and coded data inductively and deductively with validation by a third researcher. Thematic analysis was used to identify emergent themes.
resultsThe 28 interviewed parents described 6 benefits of having note access, which: provided a recap and improved their knowledge about their child's care plan, enhanced communication, facilitated empowerment, increased autonomy, and incited positive emotions. Potential challenges included that notes: caused confusion, hindered communication with the health care team, highlighted problems with note content, and could incite negative emotions. Parents recommended 4 strategies to support sharing: provide preemptive communication about expectations, optimize the note release process, consider parent-friendly note template modifications, and offer informational resources for parents.
conclusionsFindings provide a framework for operationalizing note-sharing with parents during hospitalization. These results have important implications for hospitals working to comply with federal regulations and researchers assessing the effects of increased information transparency in the inpatient setting.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.