Evidence map›Paper›PMID 36448543›Full record

ArticleBMJ open2022

Cohort profile: the Norwegian Registry of Persons Assessed for Cognitive Symptoms (NorCog) - a national research and quality registry with a biomaterial collection.

Ingrid Tøndel Medbøen, Karin Persson, Marit Nåvik, Torunn Holm Totland, Sverre Bergh, Cathrine Selnes Treviño, Ingun Ulstein, Knut Engedal, Anne-Brita Knapskog, Anne Brækhus and 10 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
3.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 27 citations in OpenAlex.

  1. Trial
  2. Changes in device-measured daily physical activity over one year in memory clinic patients.European review of aging and physical activity : official journal of the European Group for Research into Elderly and Physical Activity · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 12 institutions in 1 country.

Ingrid Tøndel MedbøenVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Karin PerssonVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Marit NåvikVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Torunn Holm TotlandDepartment of Chronic Diseases and Ageing, Norwegian Institute of Public Health, Oslo, Norway.
Sverre BerghVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Cathrine Selnes TreviñoVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Ingun UlsteinDepartment of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.
Knut EngedalVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Anne-Brita KnapskogDepartment of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.
Anne BrækhusVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway.
Anne Rita ØksengårdThe Norwegian Health Association, Oslo, Norway.
Peter Otto HorndalsveenDepartment of Old Age Psychiatry, Innlandet Hospital Trust, Ottestad, Norway.
Ingvild SaltvedtDepartment of Geriatrics, St. Olav's Hospital, Trondheim University Hospital, Trondhem, Norway.
Anne Liv LyngrothDepartment of Geriatrics, Sorlandet Hospital Arendal, Arendal, Norway.
Anette Hylen RanhoffDepartment of Medicine, Diakonhjemmet Hospital, Oslo, Norway.
Dagny Bekkeheien SkrettinglandDepartment of Geriatrics, Stavanger University Hospital, Stavanger, Norway.
Mala NaikDepartment of Clinical Science, University of Bergen, Bergen, Norway.
Jelena Zugic SoaresMedical Department, Section of Geriatrics, Lovisenberg Diaconal Hospital, Oslo, Norway.
Bente JohnsenDepartment of Geriatric Medicine, University Hospital of North Norway, Tromsø, Norway.
Geir SelbaekVestfold Hospital Trust, Norwegian National Centre for Ageing and Health, Tonsberg, Vestfold, Norway geir.selbaek@aldringoghelse.no.ORCID 0000-0001-6511-8219
Oslo University Hospital · NOInnlandet Hospital Trust · NODiakonhjemmet Hospital · NOHaraldsplass Diakonale Sykehus · NOLovisenberg Diakonale Høgskole · NONorwegian Institute of Public Health · NONorwegian University of Science and Technology · NOSørlandet Hospital Arendal · NOStavanger University Hospital · NOSykehuset i Vestfold · NOUniversity Hospital of North Norway · NOVestre Viken Hospital Trust · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe Norwegian Registry of Persons Assessed for Cognitive Symptoms (NorCog) was established to harmonise and improve the quality of diagnostic practice across clinics assessing persons with cognitive symptoms in Norwegian specialist healthcare units and to establish a large research cohort with extensive clinical data.

participantsThe registry recruits patients who are referred for assessment of cognitive symptoms and suspected dementia at outpatient clinics in Norwegian specialist healthcare units. In total, 18 120 patients have been included in NorCog during the period of 2009-2021. The average age at inclusion was 73.7 years. About half of the patients (46%) were diagnosed with dementia at the baseline assessment, 35% with mild cognitive impairment and 13% with no or subjective cognitive impairment; 7% received other specified diagnoses such as mood disorders. FINDINGS TO DATE: All patients have a detailed baseline characterisation involving lifestyle and demographic variables; activities of daily living; caregiver situation; medical history; medication; psychiatric, physical and neurological examinations; neurocognitive testing; blood laboratory work-up; and structural or functional brain imaging. Diagnoses are set according to standardised diagnostic criteria. The research biobank stores DNA and blood samples from 4000 patients as well as cerebrospinal fluid from 800 patients. Data from NorCog have been used in a wide range of research projects evaluating and validating dementia-related assessment tools, and identifying patient characteristics, symptoms, functioning and needs, as well as caregiver burden and requirement of available resources. FUTURE PLANS: The finish date of NorCog was originally in 2029. In 2021, the registry's legal basis was reformalised and NorCog got approval to collect and keep data for as long as is necessary to achieve the purpose of the registry. In 2022, the registry underwent major changes. Paper-based data collection was replaced with digital registration, and the number of variables collected was reduced. Future plans involve expanding the registry to include patients from primary care centres.

Indexed as

Biocompatible MaterialsDementiaActivities of Daily LivingAgedAmbulatory Care FacilitiesCognitionHumansRegistriesBiocompatible Materialsdelirium & cognitive disordersdementiageriatric medicineold age psychiatry

Identifiers

PMID36448543
PMCPMC9462106
OpenAlexW4294958921

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.