Trial reportParkinsonism & related disorders2023
IN-HOME-PDCaregivers: The effects of a combined home visit and peer mentoring intervention for caregivers of homebound individuals with advanced Parkinson's disease.
Trial report in Parkinsonism & related disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03189459 (Reaching the Most Vulnerable), which is not on this map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Reaching the Most Vulnerable: A Novel Model of Care in Advanced Parkinson's Disease
Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.
- Early thinking palliative care for people with Parkinson's disease: A thematic synthesis based on a systematic mixed-methods review.Journal of Parkinson's disease · 2025Pooled it
- Improving Advance Care Planning for People with Parkinson's.Movement disorders clinical practice · 2026Article
- Tensions and Opportunities in Nurse, Midwife, and Peer Worker Collaborations in Healthcare Delivery: A Scoping Review and Narrative Synthesis.Journal of advanced nursing · 2026Article
- Proceedings of the First Neuropalliative Care Research Summit (NeuroCARES).Journal of pain and symptom management · 2025Article
- Parkinson's Disease and Caregiving Roles, Demands, and Support Needs and Experiences: A Scoping Review.Healthcare (Basel, Switzerland) · 2025Article
- Factors related to social disconnectedness among older unpaid caregivers.Frontiers in public health · 2025Article
- Technological Innovations to Support Family Caregivers: A Scoping Review.Healthcare (Basel, Switzerland) · 2024Article
- "Embracing The Faith": The Contribution of Islamic Beliefs on the Provision of Care for People with Parkinson's Disease in New Zealand and Indonesia.Journal of religion and health · 2023Article
- Association of Caregiver Depression Risk With Patient Outcomes in Parkinson Disease.JAMA network open · 2023Article
- Learning to PERSEVERE: A pilot study of peer mentor support and caregiver education in Lewy body dementia.Parkinsonism & related disorders · 2023Article
- Barriers and facilitators for healthcare providers to implement family-centered care in Parkinson's disease: a scoping review.Frontiers in neurology · 2023Article
- Understanding stroke caregiving in rural contexts: a qualitative study of family caregivers' cultural values, coping behaviors, and technology use.Frontiers in neurologyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
16 authors at 4 institutions in 1 country.
Funding
Abstract
introductionFamily caregivers of people with advanced Parkinson's Disease (PD) are at high risk of caregiver strain, which independently predicts adverse patient outcomes. We tested the effects of one year of interdisciplinary, telehealth-enhanced home visits (IN-HOME-PD) with 16 weeks of peer mentoring on caregiver strain compared with usual care.
methodsWe enrolled homebound people with advanced PD (PWPD) and their primary caregiver as IN-HOME-PD dyads. We trained experienced PD family caregivers as peer mentors. Dyads received four structured home visits focused on advanced symptom management, home safety, medications, and psychosocial needs. Starting at approximately four months, caregivers spoke weekly with a peer mentor for 16 weeks. We compared one-year change in caregiver strain (MCSI, range 0-72) with historical controls, analyzed intervention acceptability, and measured change in anxiety, depression, and self-efficacy.
resultsLongitudinally, IN-HOME-PD caregiver strain was unchanged (n = 51, 23.34 (SD 9.43) vs. 24.32 (9.72), p = 0.51) while that of controls worsened slightly (n = 154, 16.45 (10.33) vs. 17.97 (10.88), p = 0.01). Retention in peer mentoring was 88.2%. Both mentors and mentees rated 100% of mentoring calls useful, with mean satisfaction of 91/100 and 90/100, respectively. There were no clinically significant improvements in anxiety, depression, or self-efficacy.
conclusionsInterdisciplinary telehealth-enhanced home visits combined with peer mentoring mitigated the worsening strain observed in caregivers of less advanced individuals. Mentoring was met with high satisfaction. Future caregiver-led peer mentoring interventions are warranted given the growing, unmet needs of PD family caregivers.
trial registrationNCT03189459.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.