Evidence map›Paper›PMID 36444373›Full record

ArticleCJC open2022

Development of a Family Engagement Measure for the Intensive Care Unit.

Michael Goldfarb, Sylvie Debigaré, Nadine Foster, Nataliya Soboleva, France Desrochers, Laura Craigie, Karen E A Burns

2 registry-linked trialsAbstract read
In one paragraph

Article in CJC open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05659485 recruitingnot on this mapstarted 2023, after this paper: background citation

Measuring Family Engagement in Care (The FAME Study)

Typeobservational_patient_registrySponsorLady Davis InstituteRan2023 to 2025Enrolled198ConditionsFamily Engagement, Patient-centered Care, Critical Care
NCT06463158 narecruitingnot on this mapstarted 2024, after this paper: background citation

A Phase I Clinical Trial Evaluating the Impact of the Family Room App on Caregiver Well-being, Satisfaction, and Engagement in the Intensive Care Unit

TypeinterventionalSponsorUniversity of NebraskaRan2024 to 2027Enrolled100ConditionsWell-Being, Psychological, Engagement, Satisfaction, ConsumerArmsFamily Room Application
3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
  2. Development and Psychometric Evaluation of the TOGETHER Family-Reported Experience Measure of Nurse-Facilitated Family Engagement in Adult Acute Care.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Validation of the French-Canadian Version of FAME, a Family Engagement Measurement Tool for the Intensive Care Unit.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026
    Observational
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Michael GoldfarbDivision of Cardiology, Jewish General Hospital, McGill University, Montreal, Quebec, Canada.
Sylvie DebigaréPatient and Family Partnership Committee, Canadian Critical Care Trials Group, Markham, Ontario, Canada.
Nadine FosterPatient and Family Partnership Committee, Canadian Critical Care Trials Group, Markham, Ontario, Canada.
Nataliya SobolevaDepartment of Nursing, Jewish General Hospital, McGill University, Montreal, Quebec, Canada.
France DesrochersDepartment of Nursing, Jewish General Hospital, McGill University, Montreal, Quebec, Canada.
Laura CraigieDepartment of Nursing, McGill University Health Centre, McGill University, Montreal, Quebec, Canada.
Karen E A BurnsInterdepartmental Division of Critical Care, Department of Medicine, University of Toronto, Toronto, Ontario, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Family engagement is a goal of care delivery in the intensive care unit (ICU). However, currently, no validated instrument for the ICU is designed specifically to measure family engagement. Our objective was to develop a novel family engagement measure. Methods: The Results: The FAME tool had a high construct validity and required an average of 3.33 minutes to complete. A total of 32 family members completed the FAME questionnaire (mean age: 52.4 ± 14.2 years; 71.4% female; 47% adult child ; 31% spouse/partner). The overall mean FAME score was 84.0% ± 25.2%. Differences in engagement across various domains were identified. Conclusions: The FAME measure is a focused and pragmatic tool to measure the degree and type of family engagement in care of patients in the ICU. Further studies are needed to evaluate the FAME tool in a larger population.

Identifiers

PMID36444373
PMCPMC9700211

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.