ReviewSociology of health & illness2023
Defining patient's experiential knowledge: Who, what and how patients know. A narrative critical review.
Review in Sociology of health & illness, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The effect of source expertise on the persuasiveness and sharing of health information on social media: A systematic review.Psychonomic bulletin & review · 2026Pooled it
- Put purpose before process: lessons from evaluating patient involvement in governance structures in health research organisations.Research involvement and engagement · 2026Article
- Expertise or representation: What gives people with lived experience authority and legitimacy in involvement in research?Research involvement and engagement · 2026Article
- Combating Medical Violence Against Deaf, DeafBlind, Blind and Partially Sighted Communities: A Community-Based Research Agenda for Canada and Abroad.Healthcare (Basel, Switzerland) · 2026Article
- "We Must be the Thorn in the Side": Experiences with Implementing Family Peer Support Workers in Adult Mental Health Care.Community mental health journal · 2026Article
- A conceptual matrix model of patient involvement and patient expertise in medicines and medical technology research and development.Research involvement and engagement · 2026Article
- Barriers and opportunities for participation in health policy decision-making by civil society groups organized for cancer in Chile: a qualitative study.Health research policy and systems · 2026Article
- Turning to Service Users for the Understanding of Current and Future Mental Health Services in the Development Process of Research and Practice: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Designing the Healthcare System for the Fulfilment of Patient Goals: A Patient-Centric Exploration in the Home Dialysis Context.The International journal of health planning and management · 2026Article
- Co-design rationales as living documents for reporting the exchange of experiential, professional and scientific perspectives in mental health care innovation.PLOS mental health · 2026Article
- Parental Knowledge, Attitudes, and Practices Regarding Low-Temperature Plasma Adenotonsillectomy for Pediatric Obstructive Sleep Apnea Syndrome: A Structural Equation Modeling Analysis.Journal of multidisciplinary healthcare · 2026Article
- What Is Shared in an Online Peer-Support Group Run by Stroke Survivors? An Exploratory Study With a Participatory Approach.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- A choice based conjoint analysis of mobile healthcare application preferences among physicians, patients, and individuals.NPJ digital medicine · 2025Article
- Perspectives of Australian healthcare professionals towards gamification in practice.Nutrition & dietetics : the journal of the Dietitians Association of Australia · 2025Article
- The Lived Experience of Participating in Online Peer-To-Peer Groups After Acquired Brain Injury: Phenomenological Study.Journal of medical Internet research · 2025Article
- Enhancing patients' role in scientific writing: insights from a global participatory approach with people with multiple sclerosis.Research involvement and engagement · 2025Article
- Dialogued into being: Constructing knowledge about hand osteoarthritis from a polyphony of voices in healthcare encounters.International journal of qualitative studies on health and well-being · 2024Article
- Designing an Intervention to Improve Medication Safety for Nursing Home Residents Based on Experiential Knowledge Related to Patient Safety Culture at the Nursing Home Front Line: Cocreative Process Study.JMIR formative research · 2024Article
- Professionals' Perceptions of the Colorectal Cancer Pathway: Results of a Co-Constructed Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Shaping and shifting schemas on supervised injectable opioid treatment: findings from a cross-sectional qualitative study in two German treatment facilities.Addiction science & clinical practice · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Experiential knowledge is today increasingly valued in health-care practices, public health policies and health research and education programs. However, despite popular and institutional success, the concept remains loosely defined with the result of weakening its heuristic scope and paving the way for its commodification. In this article, we seek to provide a finer characterisation of patients' experiential knowledge's features and specificities through a critical narrative review of humanities and social science (HSS) literature published in English and French (1976-2021). Inspired by Jovchelovitch's analysis of social knowledge, we seek to highlight the diversity and plurality of forms and articulations of knowledge that characterise experiential knowledge, as well as the gradual, dynamic and entangled process that leads from experience to knowledge and expertise. Our analysis points to the need for future research to adopt a resolutely pragmatic and situated orientation in the study of experiential knowledge and the new figures of the contemporary patient that they help to create.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.