Evidence map›Paper›PMID 36443519›Full record

ArticlePharmacoEconomics2022

Findings from a Roundtable Discussion with US Stakeholders on Valuation of the EQ-5D-Y-3L.

Jonathan L Nazari, A Simon Pickard, Ning Yan Gu

Abstract read
In one paragraph

Article in PharmacoEconomics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Trial
  2. Review
  3. The EQ-5D-5L valuation study in Nigeria.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  4. Nothing about us, without us? A reflection on and call for involving children in the process of valuing child health.The European journal of health economics : HEPAC : health economics in prevention and care · 2026
    Article
  5. Review
  6. Review
  7. Article
  8. Article
  9. Review
  10. An Australian Value Set for the EQ-5D-Y-3L.Health and quality of life outcomes · 2025
    Article
  11. Article
  12. Article
  13. Article
  14. Understanding Canadian stakeholders' views on measuring and valuing health for children and adolescents: a qualitative study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Article
  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Jonathan L NazariDepartment of Pharmacy Systems, Outcomes, and Policy, University of Illinois Chicago, Chicago, IL, USA.
A Simon PickardDepartment of Pharmacy Systems, Outcomes, and Policy, University of Illinois Chicago, Chicago, IL, USA.
Ning Yan GuSchool of Nursing and Health Professions, University of San Francisco, San Francisco, CA, USA. ngu2@usfca.edu.ORCID 0000-0002-1250-7605

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThe International Valuation Protocol for the valuation of the EQ-5D-Y-3L provides baseline guidance, but country-specific context is also important. This study aimed to obtain US stakeholders' input on key considerations for youth valuation in the US.

methodsA total of 14 stakeholders representing various backgrounds were identified via the investigators' networks. A 2-h online meeting was held to discuss (1) the need for a US value set for the EQ-5D-Y-3L; (2) willingness to pay more for quality-adjusted life-year (QALY) gains for children versus adults; (3) sampling strategies; (4) framing perspectives; and (5) other challenges. The session was recorded, transcribed, and summarized.

resultsSeveral stakeholders supported paying more for QALY gains for children in recognition of their potential future contributions to society, as well as to avoid potential undervaluation and promote access to innovative treatments. Concerns regarding possible double counting, lack of data to showcase long-term benefits, and dangers of paying more for certain subgroups were also expressed. Most of the stakeholders felt that adolescents could relate to a 10-year-old's perspective better than adults and were capable of self-completing valuation tasks, and thus should be directly included in the valuation study. There were concerns that adults would be inconsistent in their views about a 10-year-old, partly depending on their status as a parent.

conclusionsUS stakeholders provided insights relevant to youth valuation in a US context and were open to continued dialogue with investigators. This study could be useful to investigators who are conducting youth valuation studies in different countries and seeking stakeholder input.

Indexed as

Quality of LifeAdolescentAdultChildHumansParentsQuality-Adjusted Life YearsSurveys and Questionnaires

Identifiers

PMID36443519
PMCPMC9758239

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.