Evidence map›Paper›PMID 36428276›Full record

ArticlePalliative medicine2023

LGBT+ partner bereavement and appraisal of the Acceptance-Disclosure Model of LGBT+ bereavement: A qualitative interview study.

Katherine Bristowe, Liadh Timmins, Debbie Braybrook, Steve Marshall, Alexandra Pitman, Katherine Johnson, Elizabeth Day, Paul Clift, Ruth Rose, Deokhee Yi and 6 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
4.0field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 21 citations in OpenAlex.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

16 authors at 7 institutions in 2 countries.

Katherine BristoweCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.ORCID 0000-0003-1809-217X
Liadh TimminsSchool of Psychology, Swansea University, Wales, UK.ORCID 0000-0001-7984-4748
Debbie BraybrookCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.ORCID 0000-0001-9253-4955
Steve MarshallCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.ORCID 0000-0002-3728-7389
Alexandra PitmanDivision of Psychiatry, University College London, London, UK.
Katherine JohnsonSocial and Global Studies Centre, Royal Melbourne Institute of Technology, Melbourne, VIC, Australia.
Elizabeth DayPatient and Public Involvement, London, UK.
Paul CliftPatient and Public Involvement, London, UK.
Ruth RosePatient and Public Involvement, London, UK.
Deokhee YiCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.ORCID 0000-0003-4894-1689
Peihan YuCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.
Wei GaoCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.
Anna RoachGreat Ormond Street Institute of Child Health, Faculty of Population Health Sciences, London, UK.
Kathryn AlmackSchool of Health and Social Work, University of Hertfordshire, Hatfield, Hertfordshire, UK.
Michael KingDivision of Psychiatry, University College London, London, UK.
Richard HardingCicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, Bessemer Road, London, UK.ORCID 0000-0001-9653-8689
King's College London · GBGreat Ormond Street Hospital · GBSt Pancras Hospital · GBSwansea University · GBThe Royal Melbourne Hospital · AUUniversity College London · GBUniversity of Hertfordshire · GB

Funding

Medical Research Council MR/L501487/1
6 · The paper itself

Abstract

backgroundSupport from social networks is vital after the death of a partner. Lesbian, gay, bisexual and/or transgender (LGBT+) people can face disenfranchisement and isolation in bereavement. The Acceptance-Disclosure Model (of LGBT+ bereavement) posits that experiences are shaped by the extent to which individuals feel able to disclose their bereavement to others, and whether that loss is acknowledged appropriately.

aimTo explore LGBT+ specific experiences of partner bereavement; determine decision-making processes regarding disclosure of relationships/identities; and appraise the Acceptance-Disclosure Model using primary qualitative data.

designExploratory in-depth qualitative interview study positioned within a social constructivist paradigm. Data were analysed using inductive and deductive reflexive thematic analysis. SETTING/

participants21 LGBT+ people from across England bereaved of their civil partner/spouse.

resultsParticipants described LGBT+ specific stressors in bereavement: lack of recognition of their loss; inappropriate questioning; unwanted disclosure of gender history; and fears of discrimination when accessing support. Disclosure of LGBT+ identities varied across social networks. Some participants described hiding their identities and bereavement to preserve relationships, and challenging intersections between LGBT+ identities and other aspects of culture or self. These findings provide primary evidence to support the Acceptance-Disclosure Model.

conclusionsLGBT+ people face additional stressors in bereavement. Not all LGBT+ people want to talk directly about their relationships/identities. Sensitive exploration of support needs, aligned with preferences around disclosure of identities, can help foster trust. Five recommendations for inclusive practice are presented. Further research should consider whether the Acceptance-Disclosure Model has utility to explain bereavement experiences for other isolated or disenfranchised groups.

Indexed as

BereavementSexual and Gender MinoritiesDisclosureFemaleGriefHumansQualitative ResearchBereavementLGBTqualitative researchsexual and gender minorityspouses

Identifiers

PMID36428276
PMCPMC9896255
OpenAlexW4310297036

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.