ArticleAnnals of medicine2023
Country-specific reference values for PROMIS
Article in Annals of medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
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Who cites it
21 citing papers in PubMed.
- Understanding reasons for initiation and experience with tirzepatide among individuals with obesity or overweight: Results from the PERCEPTIONS survey.Obesity pillars · 2026Article
- Real-world outcomes in patients with tumor-induced osteomalacia treated vs not treated with burosumab.Journal of the Endocrine Society · 2026Article
- Measurement properties of the USER-Participation Restriction subscale and PROMISQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Longitudinal Associations Between Core Health Domains, Assessed Using the PROMIS-29, and Work Ability in a Working Population: Findings from the Lifelines Cohort Study.Journal of occupational rehabilitation · 2026Article
- PROMIS Computerized Adaptive Testing Demonstrates Strong Convergent Validity and Lower Patient Burden Compared With Legacy Instruments in Foot and Ankle Fracture Care.Foot & ankle orthopaedics · 2026Article
- Clinical course and patient-reported outcomes in conservatively managed spinal cavernous malformations.Journal of neurology · 2026Article
- Psychometric properties and reference values of nine PROMIS parent-proxy measures for children aged 5 to 7 years in the Netherlands.Journal of patient-reported outcomes · 2026Article
- Preoperative risk factors associated with patient outcomes following arthroscopic elbow contracture release.JSES international · 2026Article
- Reference values for the PROMISBMC public health · 2025Article
- Health-related quality of life in rare bleeding disorders: results from the Rare Bleeding Disorders in the Netherlands study.Research and practice in thrombosis and haemostasis · 2025Article
- New paradigms in pain management after skeletal trauma: Orthopaedic Trauma Association's 2023 Basic Science Focus Forum Symposium.OTA international : the open access journal of orthopaedic trauma · 2025Article
- Prevalence of psychiatric and sleep disorders and their impact on quality of life in children with hypermobile Ehlers-Danlos syndrome: an observational study.Rheumatology international · 2025Observational
- Article
- Observational
- Patient-reported outcomes in conservatively managed cerebral cavernous malformations.Journal of neurology · 2024Observational
- Daily functioning and (health-related) quality of life of young adult survivors of childhood bacterial meningitis.European journal of pediatrics · 2024Article
- Extending the PROMIS item bank "ability to participate in social roles and activities": a psychometric evaluation using IRT.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Psychometrics of patient-reported outcomes measurement information system in von Willebrand disease, inherited platelet function disorders, and rare bleeding disorders.Research and practice in thrombosis and haemostasis · 2024Article
- Translation and Cultural Adaptation into Arabic of Patient-Reported Outcome Measurement Information SystemHealthcare (Basel, Switzerland) · 2024Article
- The challenges of classical galactosemia: HRQoL in pediatric and adult patients.Orphanet journal of rare diseases · 2023Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionPatient-Reported Outcomes Measurement Information System (PROMIS PATIENTS AND
methodsA panel completed full PROMIS-PF (
resultsMean T-scores were close to the US mean of 50 for PROMIS-PF (49.8) and PROMIS-APSRA (50.6), lower for PROMIS-SSRA (47.5) and higher for PROMIS-PI (54.9) and PROMIS-PB (52.0). Distribution-based thresholds for mild, moderate, and severe scores were comparable to US recommended cut-off values (except for PROMIS-PI) but participants reported limitations 'earlier' than suggested thresholds.
conclusionDutch reference values were close to US reference values for some PROMIS domains but not all. We recommend country-specific reference values to facilitate worldwide PROMIS use.KEY MESSAGESPROMIS offers universally applicable IRT-based efficient and patient-friendly measures to assess commonly relevant patient-reported outcomes across medical conditions.To support the use of PROMIS in daily clinical practice and research across the world, country-specific general population reference values should be obtained.More research is necessary to obtain reliable and valid cut-off values for what constitutes mild, moderate and severe scores from the patients' perspective.
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