Observational studyJournal of racial and ethnic health disparities2023
Discrepancies in Race and Ethnicity in the Electronic Health Record Compared to Self-report.
Observational study in Journal of racial and ethnic health disparities, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Electronic health record data quality assessment and tools: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2023Pooled it
- Race and Ethnicity Data in the Electronic Health Records: New Insights Through Comparison with American Community Survey Microdata.Journal of racial and ethnic health disparities · 2026Article
- Social Determinants of Health and Outcomes in Transthyretin Amyloid Cardiomyopathy.The American journal of cardiology · 2026Article
- Social deprivation, race, and metabolic syndrome in patients with polycystic ovary syndrome.Journal of the Endocrine Society · 2026Article
- Knowledge Architecture for Race and Ethnic Group Defining in Learning Health Systems.Learning health systems · 2026Article
- Evaluating the impact of discordant and missing demographic information on population health assessments using linked electronic health records and Census Bureau microdata.PLOS digital health · 2026Article
- Collection and Use of Patient Demographic Information at US Dental School Clinics.Journal of dental education · 2026Article
- Racial and Educational Isolation are Associated with Worse Outcomes in Congenital Heart Disease.Pediatric cardiology · 2026Article
- Fewer screens, greater needs: housing insecurity and healthcare costs for transgender patients in a safety-net system.Health affairs scholar · 2026Article
- Concordance of number of chronic conditions estimated from electronic health record or self-report.Annals of epidemiology · 2025Article
- The Lifecycle of Electronic Health Record Data in HIV-Related Big Data Studies: Qualitative Study of Bias Instances and Potential Opportunities for Minimization.Journal of medical Internet research · 2025Article
- Evaluation of Reliability Between Race and Ethnicity Data Obtained from Self-report Versus Electronic Health Record.Journal of racial and ethnic health disparities · 2025Article
- The future of electronic health record-based research: Leveraging informatics in genetic counseling research.Journal of genetic counseling · 2025Article
- Higher Inpatient Racial and Ethnic Diversity Is Associated with Better Outcomes in Hispanic and Native American Patients for Gastrointestinal Diseases.Digestive diseases and sciences · 2025Article
- Infliximab Biosimilar Utilization in a Large Pediatric Learning Health System.Children (Basel, Switzerland) · 2025Article
- Recommendations to improve race identification in health records: A rapid scoping review.PloS one · 2025Article
- Discrepancies in Aggregate Patient Data between Two Sources with Data Originating from the Same Electronic Health Record: A Case Study.Applied clinical informatics · 2025Article
- Error Rates in Race and Ethnicity Designation Across Large Pediatric Health Systems.JAMA network open · 2024Article
- Hospital Accreditation Status and Treatment Differences Among Black Patients With Colon Cancer.JAMA network open · 2024Article
- Anogenital HPV-Related Cancers in Women: Investigating Trends and Sociodemographic Risk Factors.Cancers · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
objectiveRacial and ethnic disparities are commonplace in health care. Research often relies on sociodemographic information recorded in the electronic health record (EHR). Little evidence is available about the accuracy of EHR-recorded sociodemographic information, and none in pediatrics. Our objective was to determine the accuracy of EHR-recorded race and ethnicity compared to self-report.
methodsPatients/guardians enrolled in two prospective observational studies (10/2014-1/2019) provided self-reported sociodemographic information. Corresponding EHR information was abstracted. EHR information was compared to self-report, considered "gold standard." Agreement was evaluated with Cohen's kappa.
resultsA total of 503 patients (42% female, median age 12.8 years) were identified. Self-reported race (N = 484) was 73% White, 16% Black or African American (AA), 4% Asian, 5% multiracial, and 2% other. Self-reported ethnicity (N = 410) was 9% Hispanic/Latino, and 88% non-Hispanic/Latino. Agreement between self-reported and EHR-recorded race was substantial (kappa = 0.77, 95% CI 0.72-0.83). Race was discordant among 10% (47/476). Hispanic/Latino ethnicity also had strong agreement (kappa = 0.77, 95% CI 0.65-0.89). Among those who self-reported Hispanic/Latino and reported race (N = 21), race was less accurately recorded in the EHR (kappa = 0.26, 95% CI 0-0.54). Race did not match among 43% with recorded race (9/21). Among self-reported racial and/or ethnic minorities, 13% (12/164) were misclassified in the EHR as non-Hispanic White.
conclusionsWe found race and ethnicity are often inaccurately recorded in the EHR for patients who self-identify as minorities, leading to under-representation of minorities in the EHR. Inaccurately recorded race and ethnicity has important implications for disparity research, and for informing health policy. Reliable processes are needed to incorporate self-reported race and ethnicity in the EHR at institutional and national levels.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.