ArticleBMC palliative care2022
Advance care planning for patients with cancer and family caregivers in Indonesia: a qualitative study.
Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The general public's perceptions of advance care planning (ACP) in the Asia-Pacific region: a systematic review.BMC palliative care · 2026Pooled it
- Psychological Outcomes of Family Members Related to a Loved One's Resuscitation in the Emergency Department: A Cross-Sectional Study.Journal of advanced nursing · 2026Article
- Advance care planning with patients of Islamic migration background: a qualitative study identifying the need for relational autonomy and hope-sustaining communication.BMC palliative care · 2026Article
- Family Voices in Digital Patient Navigation for Cervical Cancer Care in Indonesia.Healthcare (Basel, Switzerland) · 2026Article
- Adaptation of Parental Perception of Uncertainty Scale (PPUS): A psychometric study in a genetic research center in Indonesia.Belitung nursing journal · 2026Article
- The Value of Implicitness: An Empirical Ethics Analysis of Indonesian Everyday Family Involvement in a Palliative Care Setting.Asian bioethics review · 2026Article
- Article
- Culture sensitive care in oncology care settings in Jordan: a qualitative study.Frontiers in public health · 2026Article
- Supportive Care Needs and Patient Preferences Across the Treatment Journey Among Women with Stage III-IV Breast Cancer in Urban and Rural Tasikmalaya, Indonesia: A Qualitative Study.Patient preference and adherence · 2026Article
- Multi Components in the Implementation of Advanced Care Planning for Patients with Cancer: A Scoping Review.Journal of caring sciences · 2025Review
- The effect of clinician-expressed empathy and nocebo-alleviating information on breast-cancer-patients' anxiety and side effects during active chemotherapy: A clinical feasibility study.PEC innovation · 2025Article
- The role of family and culture in the disclosure of bad news: A multicentre cross-sectional study in Pakistan.PEC innovation · 2023Article
- Cancer Survivors' Experiences With and Preferences for Medical Information Disclosure and Advance Care Planning: An Online Survey Among Indonesian Cancer Support Groups.JCO global oncology · 2023Article
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Authors and funding
10 authors.
Funding
Abstract
backgroundIndividuals' willingness to engage in advance care planning is influenced by factors such as culture and religious beliefs. While most studies on advance care planning in Asia have been performed in high-income countries, Indonesia is a lower-middle-income country, with a majority of strongly collectivist and religiously devout inhabitants. We studied the perspectives of Indonesian patients with cancer and family caregivers regarding advance care planning by first exploring their experiences with medical information-disclosure, decision-making, and advance care planning and how these experiences influence their perspectives on advance care planning.
methodsWe conducted semi-structured interviews among 16 patients with cancer and 15 family caregivers in a national cancer center in Jakarta and a tertiary academic general hospital in Yogyakarta. We performed an inductive thematic analysis using open, axial, and selective coding. The rigor of the study was enhanced by reflective journaling, dual coding, and investigator triangulation.
resultsTwenty-six of 31 participants were younger than 60 years old, 20 were Muslim and Javanese, and 17 were college or university graduates. Four major themes emerged as important in advance care planning: (1) participants' perceptions on the importance or harmfulness of cancer-related information, (2) the importance of communicating bad news sensitively (through empathetic, implicit, and mediated communication), (3) participants' motives for participating in medical decision-making (decision-making seen as patients' right or responsibility, or patients' state of dependency on others), and (4) the complexities of future planning (e.g., due to its irrelevance to participants' religious beliefs and/or their difficulties in seeing the relevance of future planning).
conclusionsCulturally sensitive approaches to advance care planning in Indonesia should address the importance of facilitating open communication between patients and their families, and the various perspectives on information provision, bad news communication, and decision-making. Advance care planning should focus on the exploration of patients' values, rather than drafting treatment plans in advance.
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