ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2023
Using Rasch measurement theory to explore the fitness for purpose of the genetic counseling outcome scale: a tale of two scales.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Assessing Swedish genetic counselling outcome measures for autism and general use: Rasch findings highlight the need for improved measures.BMC psychology · 2026Article
- Exploring the potential usefulness of the GCOS-16 for expanded applications.European journal of human genetics : EJHG · 2025Article
- Psychological state at the time of psychiatric genetic counseling impacts patient empowerment: A pre-post analysis.Journal of genetic counseling · 2025Article
- Translation, cross-cultural adaptation, and preliminary validation of a patient-reported outcome measure for genetic counseling outcomes in Sweden.Journal of genetic counseling · 2025Article
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Authors and funding
3 authors.
Funding
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Abstract
backgroundThe genetic counseling outcome scale (GCOS-24) is commonly used in clinical genetics to measure patient empowerment; however, there is inconclusive psychometric evidence about this scale.
methodsUsing data from an urban Canadian clinic where the GCOS-24 is routinely administered before (T1) and 1 month after (T2) genetic counseling, we used Rasch measurement theory (RMT) to test the ordering of response option thresholds, fit, spread of item locations, residual correlations, person separation index (PSI), and stability across time.
resultsData from 379 participants showed that the original GCOS-24 items had poor fit to the Rasch model (χ
conclusionThese models show that there are psychometric issues with the GCOS-24 scale, and our study provides options for how to measure empowerment more robustly.
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