Evidence map›Paper›PMID 36409541›Full record

ArticleJMIR formative research2022

A Digital Platform to Support HIV Case Management for Youth and Young Adults: Mixed Methods Feasibility Study.

Connie Fee, Julia Fuller, Carly E Guss, Elizabeth R Woods, Ellen R Cooper, Urmi Bhaumik, Dionne Graham, Sandra K Burchett, Olivia Dumont, Emily B Martey and 7 more

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in JMIR formative research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03758066 (PlusCare), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.2field-weighted citation impact, top 48% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03758066 nacompletednot on this map

PlusCare: Mobile Platform to Increase Linkage to Care in Adolescents Living With HIV/AIDS

TypeinterventionalSponsorDimagi Inc.Ran2019 to 2020Enrolled65ConditionsHIV/AIDSArmsPlusCare
3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 2 citations in OpenAlex.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 8 institutions in 1 country.

Connie Fee *University of San Francisco, San Francisco, CA, United States.ORCID https://orcid.org/0000-0002-5410-2892
Julia Fuller *Dimagi, Inc, Cambridge, MA, United States.ORCID https://orcid.org/0000-0001-9788-6095
Carly E Guss *Division of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0003-0450-6706
Elizabeth R WoodsDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0003-2835-5535
Ellen R CooperBoston University School of Medicine, Boston, MA, United States.ORCID https://orcid.org/0000-0001-8280-5192
Urmi BhaumikDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0002-9565-6381
Dionne GrahamHarvard Medical School, Boston, MA, United States.ORCID https://orcid.org/0000-0002-1526-547X
Sandra K BurchettHarvard Medical School, Boston, MA, United States.ORCID https://orcid.org/0000-0002-7106-9262
Olivia DumontDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0003-4074-8366
Emily B MarteyDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, Boston, MA, United States.ORCID https://orcid.org/0000-0003-4709-780X
Maria NarvaezDivision of Pediatric Infectious Diseases, Boston Medical Center, Boston, MA, United States.ORCID https://orcid.org/0000-0002-1018-6887
Jessica E HabererHarvard Medical School, Boston, MA, United States.ORCID https://orcid.org/0000-0001-5845-3190
Dallas SwendemanDepartment of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID https://orcid.org/0000-0002-4570-6352
Shelagh A MulvaneySchool of Nursing, Vanderbilt University, Nashville, TN, United States.ORCID https://orcid.org/0000-0003-1622-6744
Vikram S KumarDimagi, Inc, Cambridge, MA, United States.ORCID https://orcid.org/0000-0002-7545-4942
Jonathan L JacksonDimagi, Inc, Cambridge, MA, United States.ORCID https://orcid.org/0000-0002-7746-2129
Y Xian Ho *Dimagi, Inc, Cambridge, MA, United States.ORCID https://orcid.org/0000-0002-1885-6136
Boston Children's Hospital · USDimagi (United States) · USBoston Medical Center · USBoston University · USHarvard University · USUniversity of California, Los Angeles · USUniversity of San Francisco · USVanderbilt University · US

Funding

UCLA Rapid, Relevant, Rigorous Implementation Science HubP30MH058107 · NIMH · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI Nina Thawata Harawa · 1997 to 2026
$53.5M
PlusCare: Mobile platform to increase linkage to care in adolescents living with HIV/AIDSR44MH117956 · NIMH · DIMAGI, INC. · PI JACKSON, JONATHAN LEE, KUMAR, VIKRAM SHEEL · 2018 to 2019
$1.5M
NIMH NIH HHS P30 MH058107NIMH NIH HHS R44 MH117956
6 · The paper itself

Abstract

backgroundAdvances in medical treatments in recent years have contributed to an overall decline in HIV-related opportunistic infections and deaths in youth; however, mortality and morbidity rates in perinatally and nonperinatally infected adolescents and young adults (AYA) living with HIV remain relatively high today.

objectiveThe goal of this project was to assess the use, utility, and cost-effectiveness of PlusCare, a digital app for HIV case management in AYA living with HIV. The app supports routine case management tasks, such as scheduling follow-up visits, sharing documents for review and signature, laboratory test results, and between-visit communications (eg, encouraging messages).

methodsWe conducted a single-group mixed methods pre-post study with HIV case management programs in 2 large urban hospitals in the Boston metro area. Case management staff (case managers [CMs], N=20) and AYA living with HIV participants (N=45) took part in the study with access to PlusCare for up to 15 and 12 months, respectively.

resultsThe CMs and AYA living with HIV reported mean System Usability Scale scores of 51 (SD 7.9) and 63 (SD 10.6), respectively. Although marginally significant, total charges billed at 1 of the 2 sites compared with the 12 months before app use (including emergency, inpatient, and outpatient charges) decreased by 41% (P=.046). We also observed slight increases in AYA living with HIV self-reported self-efficacy in chronic disease management and quality of life (Health-Related Quality of Life-4) from baseline to the 12-month follow-up (P=.02 and P=.03, respectively) and increased self-efficacy from the 6- to 12-month follow-up (P=.02). There was no significant change in HIV viral suppression, appointment adherence, or medication adherence in this small-sample pilot study.

conclusionsAlthough perceived usability was low, qualitative feedback from CMs and use patterns suggested that direct messaging and timely, remote, and secure sharing of laboratory results and documents (including electronic signatures) between CMs and AYA living with HIV can be particularly useful and have potential value in supporting care coordination and promoting patient self-efficacy and quality of life.

trial registrationClinicalTrials.gov NCT03758066; https://clinicaltrials.gov/ct2/show/NCT03758066.

Indexed as

case managementdigital healthHIVmHealthmobile healthmobile phoneyoung adultyouth

Identifiers

PMID36409541
PMCPMC9723976
OpenAlexW4309665341

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.