Evidence map›Paper›PMID 36409392›Full record

ArticleJournal of autism and developmental disorders2024

Experiences of Support Following Autism Diagnosis in Adulthood.

Yunhe Huang, Samuel R C Arnold, Kitty-Rose Foley, Julian N Trollor

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.0field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 20 citations in OpenAlex.

  1. "Autism Diagnosis as a Guide": Taiwanese Adolescents' Own Experiences of Receiving Autism Diagnoses.Autism : the international journal of research and practice · 2026
    Article
  2. Article
  3. Autistic Adults and Loved Ones' Experiences of a Later Life Diagnosis.Journal of autism and developmental disorders · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Yunhe HuangDepartment of Developmental Disability Neuropsychiatry (3DN), UNSW Sydney, Sydney, NSW, 2052, Australia.ORCID http://orcid.org/0000-0003-0961-8475
Samuel R C ArnoldDepartment of Developmental Disability Neuropsychiatry (3DN), UNSW Sydney, Sydney, NSW, 2052, Australia. samuel.arnold@unsw.edu.au.ORCID http://orcid.org/0000-0003-2900-223X
Kitty-Rose FoleyDepartment of Developmental Disability Neuropsychiatry (3DN), UNSW Sydney, Sydney, NSW, 2052, Australia.
Julian N TrollorDepartment of Developmental Disability Neuropsychiatry (3DN), UNSW Sydney, Sydney, NSW, 2052, Australia.
UNSW Sydney · AU

Funding

Cooperative Research Centre for Living with Autism 3013Department of Education, Skills and Employment, Australian Government Research Training Program
6 · The paper itself

Abstract

This study aimed to explore experiences of support after adulthood autism diagnosis. In this mixed-methods survey study of 137 adults, we found that most common formal supports received were counselling and mental health. Common unmet support needs were sensory sensitivities and accessing other services. Cost, lack of information, and fear of not being taken seriously were common barriers. Informal support was mainly helpful for self-understanding and emotions toward diagnosis. Qualitative findings included difficulties accessing formal support, need for practical quality-of-life supports and support from autistic peers and online communities. Based on these findings, future development of supportive interventions should address unmet needs, improve access, and explore the integration of autistic peer support and online support into formal services.

Indexed as

Autism Spectrum DisorderAutistic DisorderChild Development Disorders, PervasiveAdultChildEmotionsHumansSurveys and QuestionnairesAdultsAutismDiagnosisHealth servicesInterventionsSupport

Identifiers

PMID36409392
OpenAlexW4309514266

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.