ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2023
Validation of a Measure of Role Overload and Gains for End-of-Life Dementia Caregivers.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed, 5 citations in OpenAlex.
- Role Overload and Health Among Family Caregivers of Older Persons in the United States: Does Religious Attendance Matter?Journal of religion and health · 2026Article
- Caregivers serving as confidants: relationship correlates and well-being by care-recipients' dementia status.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Rapid Review of Family Caregiver Engagement in Hospice and End-of-Life Patient Care: Implications for Nursing Practice.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2025Review
- Prevalence Estimates of Arthritis and Activity-Limiting Pain Among Family Caregivers to Older Adults.The Gerontologist · 2024Article
- Introduction to ADRD Care in Context.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
Abstract
objectivesCaregiving stress process models suggest that heterogeneous contexts differentially contribute to caregivers' experiences of role overload and gains. End-of-life (EOL) caregivers, especially EOL dementia caregivers, facing unique challenges and care tasks, may experience role overload and gains in different ways than other caregivers. This study evaluates measurement invariance of role overload and gains between EOL caregivers and non-EOL caregivers and between EOL dementia and EOL non-dementia caregivers.
methodsWe utilized role gains and overload data from 1,859 family caregivers who participated in Round 7 of the National Study of Caregiving. We ran confirmatory factor analyses to investigate the factorial structure across all caregivers and then examined the structure's configural, metric, and scalar invariance between (a) EOL caregivers and non-EOL caregivers and (b) EOL dementia and EOL non-dementia caregivers.
resultsAcross the entire sample, the two-factor overload and gains model had good fit (χ 2(19) = 121.37, p < .0001; RMSEA = .053, 90% CI = [.044, .062]; CFI = .954; TLI = .932). Tests of invariance comparing EOL caregivers to non-EOL caregivers and EOL dementia caregivers to EOL non-dementia caregivers maintained configural, metric, and partial scalar invariance. Latent mean comparisons revealed that EOL caregivers had higher role overload (p = .0002), but no different role gains (p = .45), than non-EOL caregivers. Likewise, EOL dementia caregivers had higher role overload (p = .05), but no different role gains (p = .42), than EOL non-dementia caregivers. DISCUSSION: Results offer both a deeper theoretical understanding of end-of-life dementia caregivers' experiences of role overload and gains, and a practical tool to measure those experiences.
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