Evidence map›Paper›PMID 36409011›Full record

ArticleAutism : the international journal of research and practice2023

Co-design of an NHS primary care health check for autistic adults.

Helen Taylor, Barry Ingham, David Mason, Tracy Finch, Colin Wilson, Clare Scarlett, Sebastian Moss, Carole Buckley, Anna Urbanowicz, Dora Raymaker and 8 more

Abstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Trial
  2. Review
  3. Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. Article
  9. Article
  10. Barriers to healthcare for Australian autistic adults.Autism : the international journal of research and practice · 2024
    Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Helen TaylorNewcastle University, UK.ORCID 0000-0002-2847-9661
Barry InghamCumbria, Northumberland, Tyne and Wear NHS Foundation Trust, UK.
David MasonNewcastle University, UK.ORCID 0000-0002-1382-4688
Tracy FinchNorthumbria University, UK.
Colin WilsonNewcastle University, UK.
Clare ScarlettNHS Newcastle Gateshead Clinical Commissioning Group, UK.
Sebastian MossNHS Northumberland Clinical Commissioning Group, UK.
Carole BuckleyRoyal College of General Practitioners, UK.
Anna UrbanowiczThe University of Queensland, Australia.ORCID 0000-0002-7909-4526
Dora RaymakerPortland State University, USA.ORCID 0000-0001-8237-6041
Charlotte SeibothNewcastle University, UK.
Rhianna LeesNewcastle University, UK.
Deborah GarlandNational Autistic Society, UK.
Malcolm OsbourneThe Kayaks Support Group, UK.
Nicholas LennoxThe University of Queensland, Australia.
Sally-Ann CooperUniversity of Glasgow, UK.ORCID 0000-0001-6054-7700
Christina NicolaidisPortland State University, USA.ORCID 0000-0002-9394-5956
Jeremy R ParrNewcastle University, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

lay abstractAutistic people are on average more likely to experience poor health than people who are not autistic. Health checks have been shown to improve access to effective healthcare. This study investigated people's views about a primary care health check for autistic adults. We held discussion groups and interviewed autistic adults, adults with intellectual disabilities, supporters and health professionals. People wanted the health check to look at a person's physical and mental health, and how they were doing socially. They thought people should be able to share information about their needs and the reasonable adjustments they would like before the health check. They wanted healthcare services to change the way they communicate with autistic people, such as being able to book appointments online rather than by telephone. They wanted a choice in how the health check was completed, with video call or email offered as well as face-to-face appointments. People thought further training of primary care staff on autism was needed, to increase awareness of the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently to non-autistic people. Clinicians raised questions about whether mental health and social care services could meet the additional needs that might be identified through the health check. We used this information to design an NHS primary care health check for autistic people in collaboration with autistic people, supporters and health professionals.

Indexed as

Autism Spectrum DisorderAutistic DisorderAdultHumansMental HealthPrimary Health CareState Medicineautismautism spectrum disordershealth checkhealth servicesqualitative research

Identifiers

PMID36409011
PMCPMC10115930

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.