Evidence map›Paper›PMID 36401816›Full record

ArticleHealth services research2023

Development and pilot test of a pregnancy decision making tool for women with physical disabilities.

Claire Z Kalpakjian, Heidi J Haapala, Susan D Ernst, Brittany R Orians, Melissa L Barber, Lukonde Mulenga, Shannen Bolde, Jodi M Kreschmer, Rebecca Parten, Susan Carlson and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health services research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Claire Z KalpakjianDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.ORCID 0000-0001-6652-1245
Heidi J HaapalaDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.ORCID 0000-0002-9950-6188
Susan D ErnstDepartment of Obstetrics and Gynecology, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Brittany R OriansCommunity member.
Melissa L BarberCommunity member.
Lukonde MulengaDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Shannen BoldeDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Jodi M KreschmerDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Rebecca PartenDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Susan CarlsonDepartment of Obstetrics and Gynecology, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Sara RosenblumDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Gina M JayDepartment of Physical Medicine and Rehabilitation, University of Michigan Medical School, Ann Arbor, Michigan, USA.

Funding

Michigan Institute for Clinical and Health Research (MICHR)UL1TR002240 · NCATS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI LUMENG, JULIE C, MASHOUR, GEORGE ALEXANDER · 2017 to 2022
$54.9M
Decision Making, Disability & Pregnancy: Content Development of a Pregnancy Decision Making Tool for Women with Physical DisabilitiesR21HD092526 · NICHD · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI KALPAKJIAN, CLAIRE ZABELLE · 2018 to 2019
$427k
NCATS NIH HHS UL1 TR002240NICHD NIH HHS R21 HD092526
6 · The paper itself

Abstract

objectiveDesign and pilot test a new decision making tool for women with physical disabilities (impairment of physical function due to chronic conditions) considering pregnancy. DATA SOURCES AND STUDY

settingQuantitative surveys and qualitative interviews were collected from participants living in the community. STUDY

designClinical guidelines and survey and focus group data about pregnancy informational and decisional needs guided content development. The tool was pilot tested in a 12-week trial with participants with physical disabilities considering or actively planning a pregnancy. Feasibility outcomes were acceptability, implementation, and demand (collected at end of the trial); preliminary efficacy focused on decisional conflict and readiness (baseline, 6 weeks, and end of trial). DATA COLLECTION: Survey data were collected using an online form. One-on-one interviews were conducted to learn more about experience using the tool. PRINCIPAL

findingsThirty eight participants with mild, moderate, or severe physical disabilities participated. Feasibility outcomes indicated that the tool provided participants with information, guiding questions, and helped them to consider multiple aspects of the decision about pregnancy. Most participants responded positively to the new decision making tool, finding it easy to use and the information balanced. Feedback highlighted opportunity for improvement, such as more specific information, peer stories, and the limitations of a paper format. There was significant linear effect of time, with increased decisional certainty and readiness, values clarity, and decisional support (partial η

conclusionsThe new tool shows promise for supporting women with physical disabilities in navigating pregnancy decision making. Future development of complementary strategies to support health care providers will help improve shared decision making and patient-centered care.

Indexed as

Decision Support TechniquesHealth PersonnelDecision MakingFemaleFocus GroupsHumansPregnancySurveys and Questionnairesdecision makingfeasibility studieshealth disparitiesphysical disabilitypregnancywomen's health

Identifiers

PMID36401816
PMCPMC9836953

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.