ArticleDementia (London, England)2023
Peer support through video meetings: Experiences of people with young onset dementia.
Article in Dementia (London, England), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and facilitators to participation in electronic health interventions in older adults with cognitive impairment: an umbrella review.BMC geriatrics · 2024Pooled it
- Exploring the Experiences of Moderators From an Asynchronous Online Dementia Support Forum: Qualitative Interview Study.JMIR formative research · 2026Article
- Providing training and support to Spanish dementia caregivers living in rural and urban areas: insights and results from the iSupport-Sp study.International journal for equity in health · 2026Article
- "Diagnosis in the Prime of Your Life": Facilitator Perspectives on Adapting the Living Well with Dementia (LivDem) Post-Diagnostic Course for Younger Adults.Behavioral sciences (Basel, Switzerland) · 2025Article
- Online peer support for Young Onset Dementia is a promising resource, but not a panacea: a commentary from the INTERDEM Young Onset Dementia taskforce.Frontiers in dementia · 2025Article
- Review
- Development of a Best Practice Guidance on Online Peer Support for People with Young-Onset Dementia.Behavioral sciences (Basel, Switzerland) · 2024Article
- Peer Support for Caregivers of People Living with Posterior Cortical Atrophy in Melbourne, Australia: A Feasibility Study.International journal of environmental research and public health · 2024Article
- Optimising Online Peer Support for People with Young Onset Dementia.International journal of environmental research and public health · 2024Article
- "It's just getting the word out there": Self-disclosure by people with young-onset dementia.PloS one · 2024Article
- "It's Another Feather in My Hat"-Exploring Factors Influencing the Adoption of Apps With People Living With Dementia.Dementia (London, England) · 2023Article
- Social support services for dementia during the COVID-19 pandemic: A longitudinal survey exploring service adaptations in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Relationship between digital exclusion and cognitive impairment in Chinese adults.Frontiers in aging neuroscience · 2023Article
- A Qualitative Literature Search and Pilot Study of Online Support Groups for Patients With Dementia and Their Carers.Gerontology & geriatric medicineReview
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with young onset dementia can experience stigmatization and social isolation. Peer support provides an opportunity for social connection and support. However, access to in-person peer support groups varies across the UK, and during the COVID-19 pandemic in-person peer support groups moved online.
objectivesWe explored the experiences of people with young onset dementia attending peer support meetings through online videoconferencing platforms, and identified barriers and facilitators.
methodsA focus group study with existing peer support groups for people with young onset dementia that had their meetings online was conducted. Participants were people living with young onset dementia. Participants were recruited through convenience and purposeful sampling. Initial contact was made with the group facilitator to discuss the study purposes and assess eligibility of the group members. The data was analysed thematically by two independent researchers, using an inductive approach.
findingsFour focus groups with UK-based peer support groups were conducted through the group's usual platform, including 20 participants. Through online peer support people stayed connected during the pandemic. It provided opportunities to meet people from different places and be involved in research projects. People found it a convenient way of connecting with others without having to travel. However, some missed in-person interaction and digital exclusion and challenges to navigate different platforms were identified as barriers. Organisational skills of the facilitator and support with getting into meetings can help overcome these challenges.
conclusionOnline platforms can make peer support more accessible for people with young onset dementia as it overcomes geographical barriers as well as barriers for those who feel uncomfortable attending an in-person group. Researchers and policy makers should explore how to implement and overcome barriers to online peer support, so that peer support is more widely accessible and clearly signposted to people with young onset dementia.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.