Evidence map›Paper›PMID 36388087›Full record

ArticleJournal of patient experience2022

Exploring the Motivational Drivers of Young Adults with Diabetes for Participation in Kidney Research.

P Mohini, M Palaganas, Y Elia, L Motran, E Sochett, J Curtis, J W Scholey, L McArthur, F H Mahmud

Open access · diamondAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of patient experience, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.3field-weighted citation impact, top 35% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 1 country.

P MohiniDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
M PalaganasDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
Y EliaDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
L MotranDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
E SochettDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
J CurtisDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
J W ScholeyDivision of Nephrology, Department of Medicine, University Health Network, Toronto, Canada.
L McArthurDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
F H MahmudDivision of Endocrinology, Department of Pediatrics, The Hospital for Sick Children, Toronto, Canada.ORCID https://orcid.org/0000-0002-3557-3584
Hospital for Sick Children · CAUniversity Health Network · CAUniversity of Toronto · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Understanding motivational drivers and barriers to patient participation in diabetes research are important to ensure research is relevant and valuable. Young adults with type 1 diabetes (T1D) completed a 31-question qualitative survey evaluating participant experience, understanding, and motivators and barriers to research involvement. A total of 35 participants, 19-28 years of age, 60% female, completed the survey. Motivating factors included personal benefit, relationship with the study team, curiosity, financial compensation, altruism, and nostalgia. Older participants (>22 years) reported higher levels of trust in the study team (p = 0.02) and their relationship with the study team positively influenced their decision to participate (p = 0.03). Financial compensation was a strong motivator for participants with higher education (p = 0.02). Age, sex, education level, and trust in the study team influenced participants' understanding. Barriers included logistics and lack of familial support. Important motivational drivers and barriers to participation in research by young adults with T1D must be considered to increase research engagement and facilitate the discovery of new knowledge.

Indexed as

barriersdiabetesmotivational driverspatient engagementresearch

Identifiers

PMID36388087
PMCPMC9663656
OpenAlexW4309410875

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.