Evidence map›Paper›PMID 36380311›Full record

ArticleBMC public health2022

Attitudes of European students towards family decision-making and the harmonisation of consent systems in deceased organ donation: a cross-national survey.

Alberto Molina-Pérez, Gabriele Werner-Felmayer, Kristof Van Assche, Anja M B Jensen, Janet Delgado, Magdalena Flatscher-Thöni, Ivar R Hannikainen, David Rodriguez-Arias, Silke Schicktanz, Sabine Wöhlke

Open access · goldAbstract read
In one paragraph

Article in BMC public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.8field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 9 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 5 countries.

Alberto Molina-Pérez *Instituto de Estudios Sociales Avanzados (IESA), CSIC, Plaza Campo Santo de los Mártires 7, 14004, Córdoba, Spain. amolina@iesa.csic.es.
Gabriele Werner-Felmayer *Institute of Biological Chemistry, Biocentre, and Bioethics Network Ethucation, Medical University Innsbruck, Innsbruck, Austria.
Kristof Van AsscheResearch Group Personal Rights and Property Rights, Faculty of Law, University of Antwerp, Antwerp, Belgium.
Anja M B JensenPublic Issues Working Group, ELPAT-ESOT, Padova, Italy.
Janet DelgadoFiloLab-UGR, Philosophy I Department, University of Granada, Granada, Spain.
Magdalena Flatscher-ThöniDepartment of Public Health, Health Services Research and Health Technology Assessment, UMIT - Private University for Health Sciences, Medical Informatics and Technology, Hall in Tyrol, Austria.
Ivar R HannikainenFiloLab-UGR, Philosophy I Department, University of Granada, Granada, Spain.
David Rodriguez-AriasFiloLab-UGR, Philosophy I Department, University of Granada, Granada, Spain.
Silke Schicktanz *Public Issues Working Group, ELPAT-ESOT, Padova, Italy.
Sabine Wöhlke *Public Issues Working Group, ELPAT-ESOT, Padova, Italy.
Universidad de Granada · ESUMIT - Private Universität für Gesundheitswissenschaften, Medizinische Informatik und Technik · ATUniversität Hamburg · DEUniversity of Antwerp · BEUniversity of Copenhagen · DK

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEuropean countries are increasingly harmonising their organ donation and transplantation policies. Although a growing number of nations are moving to presumed consent to deceased organ donation, no attempts have been made to harmonise policies on individual consent and the role of the family in the decision-making process. Little is known about public awareness of and attitudes towards the role of the family in their own country and European harmonisation on these health policy dimensions. To improve understanding of these issues, we examined what university students think about the role of the family in decision-making in deceased organ donation and about harmonising consent policies within Europe.

methodsUsing LimeSurvey© software, we conducted a comparative cross-sectional international survey of 2193 university students of health sciences and humanities/social sciences from Austria (339), Belgium (439), Denmark (230), Germany (424), Greece (159), Romania (190), Slovenia (190), and Spain (222).

resultsParticipants from opt-in countries may have a better awareness of the family's legal role than those from opt-out countries. Most respondents opposed the family veto, but they were more ambivalent towards the role of the family as a surrogate decision-maker. The majority of participants were satisfied with the family's legal role. However, those who were unsatisfied preferred to limit family involvement. Overall, participants were opposed to the idea of national sovereignty over consent policies. They favoured an opt-out policy harmonisation and were divided over opt-in. Their views on harmonisation of family involvement were consistent with their personal preferences.

conclusionsThere is overall division on whether families should have a surrogate role, and substantial opposition to granting them sole authority over decision-making. If European countries were to harmonise their policies on consent for organ donation, an opt-out system that grants families a surrogate decision-making role may enjoy the widest public support.

Indexed as

Tissue and Organ ProcurementTissue DonorsCross-Sectional StudiesDecision MakingFamilyHealth PolicyHumansStudentsConsentFamily involvementOrgan donationPolicy harmonisationSurvey

Identifiers

PMID36380311
PMCPMC9664433
OpenAlexW4309185794

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.