Evidence map›Paper›PMID 36379551›Full record

ArticleCMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne2022

Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy.

Holly Longstaff, Jaime Flamenbaum, Etienne Richer, Jeanne Egar, Christopher R McMaster, Ma'n H Zawati

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 10 citations in OpenAlex.

  1. Article
  2. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025
    Article
  3. Core elements of consent documentation for clinical research in Canada: guidance for policy.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025
    Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2022
    Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Holly LongstaffProvincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
Jaime FlamenbaumProvincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
Etienne RicherProvincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
Jeanne EgarProvincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
Christopher R McMasterProvincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que. Christopher.mcmaster@dal.ca.
Ma'n H ZawatiProvincial Health Services Authority of British Columbia (Longstaff); Faculty of Health Sciences (Longstaff), Simon Fraser University, Burnaby, BC; Ethics Office, Science and Policy Branch (Flamenbaum), Canadian Institutes of Health Research, Ottawa, Ont.; Institute of Genetics (Richer, Egar, McMaster) Canadian Institutes of Health Research, Halifax, NS; Centre of Genomics and Policy (Zawati), McGill University, Montréal, Que.
Simon Fraser University · CACanadian Institutes of Health Research · CAProvincial Health Services Authority · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Consent FormsInformed ConsentCanadaGenomic LibraryGenomicsHumansPolicy

Identifiers

PMID36379551
PMCPMC9828931
OpenAlexW4309362702

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.