Evidence map›Paper›PMID 36370457›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2023

Patient views on asthma diagnosis and how a clinical decision support system could help: A qualitative study.

Anne Canny, Eddie Donaghy, Victoria Murray, Leo Campbell, Carol Stonham, Andrew Bush, Brian McKinstry, Heather Milne, Hilary Pinnock, Luke Daines

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. The experience of shared decision-making for people with asthma: A systematic review and metasynthesis of qualitative studies.Health expectations : an international journal of public participation in health care and health policy · 2024
    Pooled it
  4. Observational
  5. Article
  6. Observational
  7. The Path to Diagnosis of Severe Asthma-A Qualitative Exploration.International journal of general medicine · 2024
    Article
  8. Prioritising universal access to respiratory diagnostics.The British journal of general practice : the journal of the Royal College of General Practitioners · 2023
    Article
  9. Patient views on asthma diagnosis and how a clinical decision support system could help: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Anne CannyAsthma UK Centre for Applied Research, Usher Institute, University of Edinburgh, Edinburgh, UK.ORCID 0000-0003-1156-383X
Eddie DonaghyAsthma UK Centre for Applied Research, Usher Institute, University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-7383-0107
Victoria MurrayAsthma UK Centre for Applied Research, Usher Institute, University of Edinburgh, Edinburgh, UK.
Leo CampbellAsthma UK Centre for Applied Research, Usher Institute, University of Edinburgh, Edinburgh, UK.
Carol StonhamNHS Gloucestershire Clinical Commissioning Group, Gloucester, UK.
Andrew BushImperial Centre for Paediatrics and Child Health and National Heart and Lung Institute, Imperial College, London, UK.ORCID 0000-0001-6756-9822
Brian McKinstryCentre for Population and Health Sciences, Usher Institute, University of Edinburgh, Edinburgh, UK.ORCID 0000-0001-9581-0468
Heather MilneSouth East GP Unit, NHS Education for Scotland, Edinburgh, UK.
Hilary PinnockAsthma UK Centre for Applied Research, Usher Institute, University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-5976-8386
Luke DainesAsthma UK Centre for Applied Research, Usher Institute, University of Edinburgh, Edinburgh, UK.ORCID 0000-0003-0564-4000

Funding

Chief Scientist Office CAF/17/01
6 · The paper itself

Abstract

introductionMaking a diagnosis of asthma can be challenging for clinicians and patients. A clinical decision support system (CDSS) for use in primary care including a patient-facing mode, could change how information is shared between patients and healthcare professionals and improve the diagnostic process.

methodsParticipants diagnosed with asthma within the last 5 years were recruited from general practices across four UK regions. In-depth interviews were used to explore patient experiences relating to their asthma diagnosis and to understand how a CDSS could be used to improve the diagnostic process for patients. Interviews were audio recorded, transcribed verbatim and analysed using a thematic approach.

resultsSeventeen participants (12 female) undertook interviews, including 14 individuals and 3 parents of children with asthma. Being diagnosed with asthma was generally considered an uncertain process. Participants felt a lack of consultation time and poor communication affected their understanding of asthma and what to expect. Had the nature of asthma and the steps required to make a diagnosis been explained more clearly, patients felt their understanding and engagement in asthma self-management could have been improved. Participants considered that a CDSS could provide resources to support the diagnostic process, prompt dialogue, aid understanding and support shared decision-making.

conclusionUndergoing an asthma diagnosis was uncertain for patients if their ideas and concerns were not addressed by clinicians and were influenced by a lack of consultation time and limitations in communication. An asthma diagnosis CDSS could provide structure and an interface to prompt dialogue, provide visuals about asthma to aid understanding and encourage patient involvement. PATIENT AND PUBLIC CONTRIBUTION: Prespecified semistructured interview topic guides (young person and adult versions) were developed by the research team and piloted with members of the Asthma UK Centre for Applied Research Patient and Public Involvement (PPI) group. Findings were regularly discussed within the research group and with PPI colleagues to aid the interpretation of data.

Indexed as

AsthmaDecision Support Systems, ClinicalGeneral PracticeAdolescentAdultChildFemaleHumansParentsQualitative Researchasthma diagnosisclinical decision support system (cdss)GPs and asthma nursespatient perspectivesprimary care

Identifiers

PMID36370457
PMCPMC9854294

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.