ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2023
The Social Cost of Providing Care to Older Adults With and Without Dementia.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Health and health service use of Australian female live-in caregivers at multiple caregiver trajectory timepoints: a population-based dataset with time-matched controls.Age and ageing · 2026Article
- Kinship, gender, and the social networks of caregivers for older adults.The Gerontologist · 2026Article
- The Present and Future Dementia Burden in China: Kinship-Based Projections and Global Comparisons.Demography · 2025Article
- Together, but Isolated: A Dyadic Study of Social Isolation in Older Adults and Caregivers.Journal of aging and health · 2025Article
- Co-calibration of cognitive performance in the National Health and Aging Trends Study with the Health and Retirement Study's Harmonized Cognitive Assessment Protocol: Implications for dementia classification.SSM - population health · 2025Article
- Care provision and social participation among older adults in Europe: longitudinal evidence from the Survey of Health, Ageing and Retirement in Europe and the English Longitudinal Study of Ageing.European journal of ageing · 2025Article
- Spouse and Child Caregivers' Experiences of Lucid Episodes in Dementia: A Mixed Methods Approach.Innovation in aging · 2025Article
- National Estimates of Incremental Work Absenteeism Costs Associated With Adult Children of Parents With Alzheimer's Disease and Related Dementias.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2024Article
- Unaddressed functional difficulty and care support among White, Black, and Hispanic older adults in the last decade.Health affairs scholar · 2023Article
- Introduction to ADRD Care in Context.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- Development of a Japanese version of the Family Stigma Instrument for dementia.Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectivesSocial participation is known to enhance well-being. Caregiving responsibilities are more intense when caring for an older adult with than without dementia and may affect caregivers' ability for social participation. We estimate social participation restrictions among caregivers for older persons with versus without dementia, variation within racial/ethnic group, and the mediating effect of care hours.
methodsWe use the 2017 National Health and Aging Trends Study (NHATS) and National Study of Caregiving (NSOC) to study family caregivers for older adults. We estimate the prevalence of social participation (e.g., visiting family/friends, religious activities, group/club activities, going out) that were important to the caregiver but missed due to caregiving. We use logistic models to test for differences in restrictions by the older adult's dementia status overall and within race/ethnic group, adjusting for caregiver and care receiver characteristics.
resultsOne-third of family caregivers for older adults with dementia reported restrictions due to caregiving, double the prevalence among caregivers of an older adult without dementia (33.3% vs 16.0%; p < .001). This doubling gap persisted in adjusted models (odds ratio [OR] = 2.4; p < .01) but mainly for White, non-Hispanic caregivers (OR = 3.2; p < .001). Substantially greater caregiving hours for people with versus without dementia was found (104 vs 60 hr per month), which is responsible for about 21% of the total difference in restrictions (p < .05). DISCUSSION: More time spent among caregivers of persons with versus without dementia may be an important factor undermining social participation, but hours only partially explain the gap. Future interventions should consider how to facilitate social participation among caregivers.
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