Observational studyPloS one2022
The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?
Observational study in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 9 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed, 10 citations in OpenAlex.
- Self-Care Behaviors and Its Associated Factors in Adult Congenital Heart Disease: A Cross-Sectional Study.Journal of cardiovascular development and disease · 2026Article
- Bridging Pediatric to Adult Care: A Scoping Review on Transitional Care for Individuals with Congenital Heart Disease Using Data Mining Techniques to Identify Key Topics.Current cardiology reports · 2026Article
- Grit in the Workplace Experienced by Taiwanese Adults With Congenital Heart Disease: A Phenomenological Study.Journal of clinical nursing · 2026Article
- Evaluation of person-centred care within the Stepstones transition program for adolescents with congenital heart disease - a document analysis.International journal of nursing studies advances · 2025Article
- Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review.Children (Basel, Switzerland) · 2024Review
- The Role of the Cardiac Surgery Patient in Pain Management: The Patient Perspective.Clinical nursing research · 2024Article
- Factors associated with empowerment after participating in a supported osteoarthritis self-management program: An explorative study.Osteoarthritis and cartilage open · 2024Article
- Correction: The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?PloS one · 2024Article
- The Assessment of Patient-Reported Outcomes for the Authorisation of Medicines in Europe: A Review of European Public Assessment Reports from 2017 to 2022.Applied health economics and health policy · 2023Review
Corrections and comments
- Erratum issued
Authors and funding
10 authors at 8 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTheoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa.
aimsThe present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD).
methodsAs part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken.
resultsWe found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found.
conclusionFeeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.