Evidence map›Paper›PMID 36337051›Full record

ArticlePalliative medicine2023

'Sadly I think we are sort of still quite white, middle-class really' - Inequities in access to bereavement support: Findings from a mixed methods study.

Lucy E Selman, Eileen Sutton, Renata Medeiros Mirra, Tracey Stone, Emma Gilbert, Yansie Rolston, Karl Murray, Mirella Longo, Kathy Seddon, Alison Penny and 4 more

Abstract read
In one paragraph

Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. The 'equity turn' and bereavement: From rhetoric to realisation.Palliative care and social practice · 2026
    Article
  6. Article
  7. Review
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Lucy E SelmanPalliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.ORCID 0000-0001-5747-2699
Eileen SuttonPalliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
Renata Medeiros MirraCardiff School of Dentistry, Cardiff University, Cardiff, UK.
Tracey StonePalliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
Emma GilbertPalliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, Bristol, UK.
Yansie RolstonUbele Initiative, London, UK.
Karl MurrayUbele Initiative, London, UK.
Mirella LongoMarie Curie Research Centre, Cardiff University, Cardiff, UK.
Kathy SeddonWales Cancer Research Centre, Cardiff, UK.
Alison PennyNational Bereavement Alliance, London, UK.
Catriona R MaylandDepartment of Oncology and Metabolism, University of Sheffield, Sheffield, UK.ORCID 0000-0002-1440-9953
Donna WakefieldNorth Tees and Hartlepool NHS Foundation Trust, Stockton-on-Tees, UK.ORCID 0000-0002-6811-1255
Anthony ByrneMarie Curie Research Centre, Cardiff University, Cardiff, UK.ORCID 0000-0002-1413-1496
Emily HarropMarie Curie Research Centre, Cardiff University, Cardiff, UK.ORCID 0000-0003-2820-0023

Funding

Medical Research Council MR/V001841/1
6 · The paper itself

Abstract

backgroundVoluntary and community sector bereavement services are central to bereavement support in the UK.

aimTo determine service providers' perspectives on access to their support before and during the COVID-19 pandemic.

designMixed methods study using an explanatory sequential design: (1) Cross-sectional online survey of UK bereavement services; (2) Qualitative interviews with staff and volunteers at selected services. SETTINGS/

participants147 services participated in the survey; 24 interviews were conducted across 14 services.

results67.3% of services reported there were groups with unmet needs not accessing their services before the pandemic; most frequently people from minoritised ethnic communities (49%), sexual minority groups (26.5%), deprived areas (24.5%) and men (23.8%). Compared with before the pandemic, 3.4% of services were seeing more people from minoritised ethnic groups, while 6.1% were seeing fewer. 25.2% of services did not collect ethnicity data. Qualitative findings demonstrated the disproportionate impact of the pandemic on minoritised ethnic communities, including disruption to care/mourning practices, and the need for culturally appropriate support. During the pandemic outreach activities were sometimes deprioritised; however, increased collaboration was also reported. Online provision improved access but excluded some. Positive interventions to increase equity included collecting client demographic data; improving outreach, language accessibility and staff representation; supporting other professionals to provide bereavement support; local collaboration and co-production.

conclusionsService providers report inequities in access to bereavement support. Attention needs to be paid to identifying, assessing and meeting unmet needs for appropriate bereavement support. Identified positive interventions can inform service provision and research.

Indexed as

BereavementCOVID-19Cross-Sectional StudiesEthnicityGriefHumansMalePandemicsbereavementbereavement servicescoronavirus infectionsgriefHealth equitypalliative carepandemics

Identifiers

PMID36337051
PMCPMC10074747

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.