Evidence map›Paper›PMID 36333195›Full record

Trial reportPatient education and counseling2023

Development of a web-based, theory-guided narrative intervention for women at elevated risk for breast cancer.

Mira L Katz, Leigha Senter, Paul L Reiter, Brent Emerson, Alysha C Ennis, Kate P Shane-Carson, Amber Aeilts, Hayley R Cassingham, Patrick M Schnell, Doreen M Agnese and 2 more

Open access · greenAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Patient education and counseling, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
3.0field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 2 citations in OpenAlex.

  1. Trial
  2. Trial
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 2 institutions in 1 country.

Mira L KatzDivision of Health Behavior and Health Promotion, College of Public Health, The Ohio State University, Columbus, OH, USA; Comprehensive Cancer Center, The Ohio State University, Columbus, OH, USA. Electronic address: mira.katz@osumc.edu.
Leigha SenterDivision of Human Genetics, Department of Internal Medicine, College of Medicine, The Ohio State University, Columbus, OH, USA.
Paul L ReiterDivision of Health Behavior and Health Promotion, College of Public Health, The Ohio State University, Columbus, OH, USA; Comprehensive Cancer Center, The Ohio State University, Columbus, OH, USA.
Brent EmersonDivision of Health Behavior and Health Promotion, College of Public Health, The Ohio State University, Columbus, OH, USA.
Alysha C EnnisDivision of Health Behavior and Health Promotion, College of Public Health, The Ohio State University, Columbus, OH, USA.
Kate P Shane-CarsonDivision of Human Genetics, Department of Internal Medicine, College of Medicine, The Ohio State University, Columbus, OH, USA.
Amber AeiltsDivision of Human Genetics, Department of Internal Medicine, College of Medicine, The Ohio State University, Columbus, OH, USA.
Hayley R CassinghamDivision of Human Genetics, Department of Internal Medicine, College of Medicine, The Ohio State University, Columbus, OH, USA.
Patrick M SchnellDivision of Biostatistics, College of Public Health, The Ohio State University, Columbus, OH, USA.
Doreen M AgneseComprehensive Cancer Center, The Ohio State University, Columbus, OH, USA; Department of Surgery, College of Medicine, The Ohio State University, Columbus, OH, USA.
Amanda E TolandComprehensive Cancer Center, The Ohio State University, Columbus, OH, USA; Division of Human Genetics, Department of Internal Medicine, College of Medicine, The Ohio State University, Columbus, OH, USA; Department of Cancer Biology and Genetics, College of Medicine, The Ohio State University, Columbus, OH, USA.
Kevin SweetDivision of Human Genetics, Department of Internal Medicine, College of Medicine, The Ohio State University, Columbus, OH, USA.
The Ohio State University · USOhio Department of Health · US

Funding

Translational Therapeutics Research Program (TT)P30CA016058 · NCI · OHIO STATE UNIVERSITY · PI Daniel G. Stover · 1985 to 2026
$132.3M
A Randomized Controlled Trial: Genetic Counseling Patient Preference Intervention via Electronic Health Record Portal vs. Conventional Genetic Counseling for Women at Elevated Risk for Breast CancerR01CA248739 · NCI · OHIO STATE UNIVERSITY · PI KATZ, MIRA L, SWEET, KEVIN M. · 2021 to 2025
$2.8M
NCI NIH HHS P30 CA016058NCI NIH HHS R01 CA248739
6 · The paper itself

Abstract

objectiveTo describe the development of a web-based, theory-guided narrative intervention that replaces conventional pre-test genetic counseling for women at elevated breast cancer risk.

methodsWe used an iterative process that was guided by health behavior theory and feedback from multiple stakeholder groups including: 1) content input from genetic experts; 2) study team input; 3) review of video storyboards, video example, study logo, recruitment materials, post-test patient preference counseling survey, and additional study surveys; 4) video series development; and 5) intervention review and finalization of study-related materials.

resultsThe intervention is patient-centered providing convenience and an opportunity for an individual's preferences for post-test counseling delivery. The intervention's efficacy is being determined in a randomized controlled trial compared to conventional genetic counseling for adherence to recommended guidelines and changes in knowledge, perception of breast cancer risk, breast cancer-specific worry, and satisfaction with counseling.

conclusionIf efficacious, the intervention may improve the delivery of the genetic testing and counseling process, inform best practices, and reduce the genetic counseling workforce burden. PRACTICE IMPLICATIONS: The developed intervention has the potential to improve the genetic testing and counseling experience for women at elevated risk for breast cancer, inform best practices, and reduce genetic counseling workforce burden.

Indexed as

Breast NeoplasmsFemaleGenetic CounselingGenetic TestingHumansInternetSurveys and QuestionnairesGenetic counselingHealth behaviorPatient educationTheory

Identifiers

PMID36333195
PMCPMC10395484
OpenAlexW4308029691

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.