Evidence map›Paper›PMID 36322481›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2022

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review.

Stacey Oliver, Jacinta Douglas, Dianne Winkler, Christopher Pearce, Ella-Rose Minter, Hannah K Jarman, Megan Topping

Open access · goldAbstract readScoping Review
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.2field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 10 citations in OpenAlex.

  1. Review
  2. Review
  3. Article
  4. The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  5. Barriers to clinical follow-up visits in multiple sclerosis: A nationwide register-based study.Multiple sclerosis journal - experimental, translational and clinical
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 2 countries.

Stacey OliverDepartment of Research and Innovation, Summer Foundation Limited, Victoria, Blackburn, Australia.ORCID 0000-0003-0841-0795
Jacinta DouglasDepartment of Research and Innovation, Summer Foundation Limited, Victoria, Blackburn, Australia.ORCID 0000-0003-0940-6624
Dianne WinklerDepartment of Research and Innovation, Summer Foundation Limited, Victoria, Blackburn, Australia.ORCID 0000-0003-3899-6248
Christopher PearceAurora Primary Care Research Institute, Victoria, Melbourne, Australia.ORCID 0000-0002-3132-6033
Ella-Rose MinterDepartment of Research and Innovation, Summer Foundation Limited, Victoria, Blackburn, Australia.ORCID 0000-0002-3184-077X
Hannah K JarmanDepartment of Research and Innovation, Summer Foundation Limited, Victoria, Blackburn, Australia.ORCID 0000-0001-8225-4511
Megan ToppingDepartment of Research and Innovation, Summer Foundation Limited, Victoria, Blackburn, Australia.ORCID 0000-0001-6008-7943
La Trobe University · AUAurora Health Care · USBlackburn College · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFor people with acquired neurological disabilities and complex needs, general practitioners (GPs) play an important role in health management and early intervention for the prevention of comorbidities and health complications. People with disability are a vulnerable group who need and have the right to, quality general practice services. It is therefore important to understand the health needs and service use of this group. The aim of this review was to identify the healthcare needs and general practice utilization of people with acquired neurological disabilities and complex needs.

methodsA scoping review methodological framework was utilized. Six databases (MEDLINE, PsycInfo, CINAHL, Scopus, Embase and the Cochrane Library) were searched. Articles were included if they reported on general practice service utilization of people with acquired neurological disabilities and complex needs aged between 18 and 65. Articles were required to be peer-reviewed, written in English and published between 2010 and 2021.

resultsThirty-one articles were included in the review. Studies originated from Canada (9), the United States (8), Australia (4), Switzerland (4), the United Kingdom (2), England (1), Norway (1), France (1) and Denmark (1). For many people, GPs were the main healthcare provider. People with disability consult multiple healthcare providers and navigate complex healthcare systems. Commonly presented healthcare needs were bladder, bowel and skin problems, pain and chronic pain, medication needs and mental health concerns.

conclusionsPeople with acquired neurological disabilities and complex needs were vulnerable to receiving suboptimal healthcare. The literature highlighted issues regarding the accessibility of services, the fragmentation of health services and inadequate preventative care. GPs were challenged to offer adequate disability-related expertise and to meet the mental health needs of people with disability within time constraints. PATIENT AND PUBLIC INVOLVEMENT: This manuscript was prepared in collaboration with a GP, who is one of the authors. A person with lived experience of acquired neurological disability was engaged to check the alignment of the findings with their personal experience and provide feedback.

Indexed as

General PracticeGeneral PractitionersPersons with DisabilitiesAdolescentAdultAgedAustraliaDelivery of Health CareHumansMiddle AgedYoung Adultdisabilitygeneral practicehealth needsprimary careutilization

Identifiers

PMID36322481
PMCPMC9700155
OpenAlexW4307971719

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.