ArticleThe oncologist2023
Perceptions of Death Among Patients with Advanced Cancer Receiving Early Palliative Care and Their Caregivers: Results from a Mixed-Method Analysis.
Article in The oncologist, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 3 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 3 syntheses or guidelines pooled it, 16 citations in OpenAlex.
- Prevalence of depression in patients with advanced cancer receiving palliative care: a meta-analysis of self-report instruments.Frontiers in psychiatry · 2026Pooled it
- What are the experiences of supportive care in people affected by brain cancer and their informal caregivers: A qualitative systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Prevalence of delirium among patients with advanced cancer: a systematic review and meta-analysis.Frontiers in neurologyPooled it
- Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026Review
- Unmet Needs of Palliative Cancer Patients: A Grounded Theory Study.The American journal of hospice & palliative care · 2026Article
- Adopting the lens of the COM-B behaviour change model to qualitatively explore and understand public health implications of young adults' attitudes towards death-talk.BMC public health · 2025Article
- The perspectives of patients, relatives, and healthcare providers on end-of-life communication in an Italian Oncological Institute.Palliative care and social practice · 2025Article
- Positive Psychological Well-Being in Early Palliative Care: A Narrative Review of the Roles of Hope, Gratitude, and Death Acceptance.Current oncology (Toronto, Ont.) · 2024Review
- Psychological assessment and the role of the psychologist in early palliative care.Frontiers in psychology · 2024Article
- Stigma of Palliative Care among Patients with Advanced Cancer and Their Caregivers on Early Palliative Care.Cancers · 2023Article
- Early palliative care for solid and blood cancer patients and caregivers: Quantitative and qualitative results of a long-term experience as a case of value-based medicine.Frontiers in public health · 2023Article
- Caregiver's quality of life in advanced cancer: validation of the construct in a real-life setting of early palliative care.Frontiers in oncology · 2023Article
Corrections and comments
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Authors and funding
23 authors at 6 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOncologists are often concerned that talking about death with patients may hinder their relationship. However, the views of death held by patients have not been thoroughly investigated. This study aimed to describe the perception of death among patients with advanced cancer receiving early palliative care (EPC) and their caregivers. MATERIAL AND
methodsQualitative and quantitative analyses were performed on 2 databases: (a) transcripts of open-ended questionnaires administered to 130 cancer patients receiving EPC with a mean age of 68.4 years and to 115 primary caregivers of patients on EPC with a mean age of 56.8; (b) texts collected from an Italian forum, containing instances of web-mediated interactions between patients and their caregivers.
resultsQuantitative analysis shows that: (a) patients and caregivers are not afraid of speaking about death; (b) patients and caregivers on EPC use the word "death" significantly more than patients on standard oncology care (SOC) and their caregivers (P < .0001). For both participants on EPC and SOC, the adjectives and verbs associated with the word "death" have positive connotations; however, these associations are significantly more frequent for participants on EPC (verbs, Ps < .0001; adjectives, Ps < .003). Qualitative analysis reveals that these positive connotations refer to an actual, positive experience of the end of life in the EPC group and a wish or a negated event in the SOC group.
conclusionsEPC interventions, along with proper physician-patient communication, may be associated with an increased acceptance of death in patients with advanced cancer and their caregivers.
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