ArticleBMC research notes2022
Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet
Article in BMC research notes, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed.
- Real-World Outcomes of Ivosidenib in IDH1-Mutant Biliary Tract Cancer: A Multicenter Retrospective Analysis and Comparison with the TrinetX Database.Targeted oncology · 2026Article
- Partnerships With Health Plans to Link Data From Electronic Health Records to Claims for Research Using PCORnet®.Medical care · 2026Article
- Article
- Linking patient records at scale with a hybrid approach combining contrastive learning and deterministic rules.Biology methods & protocols · 2026Article
- Linking clinical trial data with real-world data for enhanced clinical evidence generation: methodological considerations and recommendations.Frontiers in pharmacology · 2026Review
- Crossing borders securely: synthetic data and federated networks for privacy-preserving access to real-world data and emerging use cases.NPJ digital medicine · 2025Review
- Feasibility of machine learning analysis for the identification of patients with possible primary ciliary dyskinesia.Orphanet journal of rare diseases · 2025Article
- Enhancing Patient Identification Accuracy in Shared Child Health Records: a Hybrid Approach for the Lao Language Context.Journal of medical systems · 2025Article
- Combining Real-World and Clinical Trial Data Through Privacy-Preserving Record Linkage: Opportunities and Challenges-A Narrative Review.Health science reports · 2025Article
- Feasibility of Machine Learning Analysis for the Identification of Patients with Possible Primary Ciliary Dyskinesia.medRxiv : the preprint server for health sciences · 2025Article
- Linkage of Clinical Trial Data to Routinely Collected Data Sources: A Scoping Review.JAMA network open · 2025Article
- Data linkage multiplies research insights across diverse healthcare sectors.Communications medicine · 2025Review
- Operationalizing a research-oriented learning healthcare system across covered entities: cross-institutional strategies and innovations.npj health systems · 2025Article
- Real-World Effect of a Digitally Delivered Conservative Musculoskeletal Care Program on Spinal Diagnostic Imaging Utilization in a Commercially Insured Population with Chronic Back Pain.Journal of health economics and outcomes research · 2025Article
- Generating Real-World Evidence From the Excellence Network in Rheumatology.Pharmacoepidemiology and drug safety · 2024Article
- Privacy preserving record linkage for public health action: opportunities and challenges.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Adherence and persistence to tafamidis treatment among Medicare beneficiaries in the presence of a patient assistance program.Scientific reports · 2024Article
- Privacy-preserving record linkage across disparate institutions and datasets to enable a learning health system: The national COVID cohort collaborative (N3C) experience.Learning health systems · 2024Article
- Article
- Avenues for Strengthening PCORnet's Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR).Medical care · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors.
Funding
Abstract
objectiveThe aim of this study was to determine whether a secure, privacy-preserving record linkage (PPRL) methodology can be implemented in a scalable manner for use in a large national clinical research network.
resultsWe established the governance and technical capacity to support the use of PPRL across the National Patient-Centered Clinical Research Network (PCORnet
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.