ReviewJAMA pediatrics2023
Inclusion of Non-English-Speaking Participants in Pediatric Health Research: A Review.
Review in JAMA pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 2 syntheses or guidelines pooled it, 51 citations in OpenAlex.
- Strategies to increase participant diversity in pediatric research: a systematic review.Pediatric research · 2026Pooled it
- Inclusion of Participants With Limited English Proficiency in Autism Research.Autism research : official journal of the International Society for Autism Research · 2026Pooled it
- Examining Audiometric Screening Outcomes in Non-Native English-Speaking Pediatric Patients.Journal of immigrant and minority health · 2026Article
- Parents' Perspectives on Access to Pediatric Rare Disease Cross-Border Clinical Trials in Europe: Experiences of Language Inclusion and Preferences.Therapeutic innovation & regulatory science · 2026Article
- Language as an Eligibility Criterion in Pediatric Study Protocols Conducted in Europe (2007-2024) Reported in the ClinicalTrials.gov Database.Pharmaceutical medicine · 2026Article
- Disparities in Headache Care and Research in Children and Adolescents: A Narrative Review.Current pain and headache reports · 2026Review
- Promoting the recruitment of historically underrepresented children and families in clinical trials: Perspectives of pediatric clinic staff.Contemporary clinical trials communications · 2026Article
- The association of medical mistrust, clinical trial knowledge, and perceived clinical trial risk with willingness to participate in health research among historically marginalized individuals living in New York City.Discover health systems · 2026Article
- Wait-List Controlled Pilot Trial of a Preventive Mental Health Intervention for Refugee Youth.Journal of immigrant and minority health · 2025Article
- Persistent exclusion of non-English speakers in Pediatric research: a national analysis using ClinicalTrials.gov.Pediatric research · 2025Article
- Uncovering systemic barriers related to equity, diversity and inclusion in child health research: a scoping review addressing marginalised communities.BMJ global health · 2025Article
- A scoping review of Spanish language pediatric digital health interventions.Journal of pediatric psychology · 2025Article
- Do You Speak English or Spanish? Language as a Predictor of Health Outcomes Among Hispanic Adolescents.Journal of immigrant and minority health · 2025Article
- Achieving Language Justice in Pediatric Hematology-Oncology: A Multinational Perspective for Language-Concordant Equitable Patient- and Family-Centered Care and Research Inclusion.Pediatric blood & cancer · 2025Review
- Researcher Perceptions of Inclusion of Study Participants Who Use Languages Other Than English.JAMA network open · 2025Article
- A multimodal multidomain multilingual medical foundation model for zero shot clinical diagnosis.NPJ digital medicine · 2025Article
- Multilingual Research Strategies to Enhance Equity.JAMA pediatrics · 2025Article
- Inclusion of Community-Based Participatory Research in High-Impact Medical Journals.Health equity · 2025Article
- "How Fluent Do I Need to Be to Say I'm Fluent?" Research Experiences of Communities that Speak Languages Other than English.Community health equity research & policy · 2025Article
- Cultural Adaptation of Child Discipline Measures for Puerto Rican Mothers: Enhancing the Cultural Sensitivity of Parenting Assessments.Children (Basel, Switzerland) · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 3 institutions in 1 country.
Funding
Abstract
Importance: The inclusion of non-English-speaking (NES) participants in pediatric research is an essential step to improving health equity for these populations. Although some studies have shown lack of progress in NES research participation in the past decade, few have examined NES inclusivity in pediatric research or details about the practices that researchers have used to communicate with NES participants. Objective: To assess how frequently NES families were included in pediatric research, how rates of inclusion changed over time, what languages were included, and methodological details about oral and written communication with NES participants. Evidence Review: In this review, all original investigation articles published in JAMA Pediatrics, Pediatrics, and The Journal of Pediatrics between January 2012 and November 2021 were screened. Eligible articles, which included those based in the US and with human participants, were reviewed to determine whether they included or excluded NES participants or whether or not there was specific mention of language. A second-round review was conducted on the subset of articles that included NES participants to determine methodological details (eg, languages included, type of study, region where the study was located, and oral and written communication practices with NES participants). Findings: Of the 8142 articles screened, 5008 (62%) met inclusion criteria; of these, 469 (9%) included NES participants. The most common language was Spanish (350 [75%]); 145 articles (31%) reported non-English or other language without specification. A total of 230 articles (49%) reported the number of NES participants, and 61 (13%) specified the methods used to determine whether participants preferred a language other than English. In all, 101 (22%) and 136 (29%) articles specified how oral and written communication occurred with NES participants, respectively. Conclusions and Relevance: This review of 3 pediatric journals provides preliminary evidence suggesting exclusion of NES communities from pediatric research from 2012 to 2021 and highlights an opportunity to provide more methodological detail about communication with NES participants. Best practices for improving inclusivity of NES participants are needed to guide researchers toward improved methods and more relevant results.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.