ArticlePediatric blood & cancer2023
"The simple life experiences that every other human gets": Desire for normalcy among adolescents and young adults with advanced cancer.
Article in Pediatric blood & cancer, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 14 citations in OpenAlex.
- Review
- Development of a Novel Psychosocial Intervention to Improve Symptom Management for Adolescents and Young Adults with Advanced or Recurrent Cancer.Journal of adolescent and young adult oncology · 2026Article
- Criteria for unmet need in paediatric populations and their families: a literature-based case study in haematological malignancies in upper-middle and high-income countries.Frontiers in pediatrics · 2026Review
- Harnessing Social Media to Develop Conceptual Domains of Quality of Life for Adolescents With Advanced Cancer.Psycho-oncology · 2025Article
- Clinical effectiveness of best-evidence cancer distress management in a real-world practice setting.Translational behavioral medicine · 2025Article
- Navigating normalcy: designing personal health visualizations for pediatric kidney transplant recipients and caregivers.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Advanced Cancer in Young Adults (YAs): Living in a Liminal Space.Qualitative health research · 2024Article
- What Constitutes Quality of Life? Perspectives of Adolescents and Young Adults With Advanced Cancer.Journal of the National Comprehensive Cancer Network : JNCCN · 2023Article
- "I won't get to live my life the way I planned it": A qualitative analysis of the experiences of adolescents and young adults with advanced cancer.Pediatric blood & cancer · 2023Article
- The End-of-Life Wishes and Preferences of Adolescents with Cancer: A Scoping Review.Palliative medicine reportsReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
21 authors at 8 institutions in 2 countries.
Funding
Abstract
backgroundAdolescents and young adults (AYAs) with advanced cancer identify normalcy as an important component of quality end-of-life care. We sought to define domains of normalcy and identify ways in which clinicians facilitate or hinder normalcy during advanced cancer care. PROCEDURE: This was a secondary analysis of a qualitative study that aimed to identify priority domains for end-of-life care. Content analysis of semi-structured interviews among AYAs aged 12-39 years with advanced cancer, caregivers, and clinicians was used to evaluate transcripts. Coded excerpts were reviewed to identify themes related to normalcy.
resultsParticipants included 23 AYAs with advanced cancer, 28 caregivers, and 29 clinicians. Participants identified five domains of normalcy including relationships, activities, career/school, milestones, and appearance. AYAs and caregivers identified that clinicians facilitate normalcy through exploration of these domains with AYAs, allowing flexibility in care plans, identification of short-term and long-term goals across normalcy domains, and recognizing losses of normalcy that occur during cancer care.
conclusionsAYAs with cancer experience multiple threats to normalcy during advanced cancer care. Clinicians can attend to normalcy and improve AYA quality of life by acknowledging these losses through ongoing discussions on how best to support domains of normalcy and by reinforcing AYA identities beyond a cancer diagnosis.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.