Evidence map›Paper›PMID 36307935›Full record

ArticlePsycho-oncology2022

Communication about diagnosis and prognosis-A population-based survey among bereaved parents in pediatric oncology.

Cecilia Bartholdson, Ulrika Kreicbergs, Josefin Sveen, Malin Lövgren, Lilian Pohlkamp

Abstract read
In one paragraph

Article in Psycho-oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
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  3. Review
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  5. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Cecilia BartholdsonChildhood Cancer Research Unit, Department of Women's & Children's Health, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0001-5807-3438
Ulrika KreicbergsChildhood Cancer Research Unit, Department of Women's & Children's Health, Karolinska Institutet, Stockholm, Sweden.
Josefin SveenDepartment of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Malin LövgrenDepartment of Health Care Sciences, Palliative Research Centre, Marie Cederschiöld University College (formerly Ersta Sköndal Bräcke University College), Stockholm, Sweden.
Lilian PohlkampDepartment of Health Care Sciences, Palliative Research Centre, Marie Cederschiöld University College (formerly Ersta Sköndal Bräcke University College), Stockholm, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionWhen a child is diagnosed with cancer, the whole family is affected, and parents struggle to grasp challenging information regarding diagnosis and prognosis. Most parents and children want honest communication and openness, yet this remains a complex and challenging task for healthcare professionals.

objectivesTo describe bereaved mothers' and fathers' reports of communication of their child's cancer diagnosis and when the illness became incurable.

methodsData from a Swedish population-based survey conducted in 2016, including 135 mothers and 97 fathers who had lost a child to cancer 1-5 years earlier, were studied regarding the parents' reports of communication about their child's illness.

resultsA vast majority of parents wants information when their child's illness becomes incurable, and this need is generally met. However, fathers to a lesser extent than mothers, reported that they were informed about it. According to parents' reports 87% of children received diagnostic information and 44% of the children received prognostic information.

conclusionA vast majority of both mothers and fathers would like to know when their child's illness becomes incurable, yet it remains unknown to what extent they want their child to be informed.

Indexed as

NeoplasmsParentsChildCommunicationFathersFemaleHumansMaleMothersPrognosiscancerchildrencommunicationdiagnosisoncologyparentsprognosispsycho-oncology

Identifiers

PMID36307935
PMCPMC10098496

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.