ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Guiding, sustaining and growing the public involvement of young people in an adolescent health research community of practice.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Evaluation of Co-Production in Adolescent Health Research: A Mixed Methods Study From Born in Bradford.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Training Adolescents and Young Adults to be Partners in Research: Co-Creating the Young Patients' Autoimmune Research and Empowerment Alliance.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Adolescent Involvement in Co-Authoring Peer Reviewed Publications: A Reflection of Challenges and Best Practice Recommendations.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Communities of Practice and Living Labs: A Scoping Review of Principles and Methodologies for Involvement of Lived Experience Experts in Health and Healthcare Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Collaborating With Young People: Identifying the Barriers and Facilitators in Co-Designed Research.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Co-designing an online educational resource to help adolescents improve their digital health literacy.BMC public health · 2025Article
- Codesign is the zeitgeist of our time, but what do we mean by this? A scoping review of the concept of codesign in collaborative research with young people.Health research policy and systems · 2025Article
- From 'publish or perish' to 'publish with purpose': perspectives from young adults with lived and living experience on transforming academic publishing in patient-oriented research.Research involvement and engagement · 2024Article
- Reflections on the benefits and challenges of using co-produced artistic workshops to engage with young people in community settings.Research involvement and engagement · 2024Article
- Understanding and Defining Young People's Involvement and Under-Representation in Mental Health Research: A Delphi Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Accelerating implementation of adolescent digital health prevention programs: analysis of insights from Australian stakeholders.Frontiers in public health · 2024Article
- Guiding, sustaining and growing the public involvement of young people in an adolescent health research community of practice.Health expectations : an international journal of public participation in health care and health policy · 2022Article
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Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPublic involvement in health research and its translation is well recognized to improve health interventions. However, this approach is insufficiently practised and evidenced in relation to young people. This paper presents an analysis of the process of co-producing a framework, partnership model and a growing network of young people informing and guiding an adolescent health research community of practice.
methodsA Living Lab is a participatory research approach that brings together a broad range of stakeholders in iterative cycles of research, design, development, pilot-testing, evaluation and delivery to implement effective responses to complex phenomena. The geographical setting for this study was Sydney, NSW, Australia, and involved both youth and adult stakeholders from this region. The study spanned three phases between July 2018 and January 2021, and data collection included a range of workshops, a roundtable discussion and an online survey.
resultsThe co-production process resulted in three key outputs: first, an engagement framework to guide youth participation in health research; second, a partnership model to sustain youth and adult stakeholder collaboration; third, the growth of the public involvement of young people with a range of projects and partners.
conclusionsThis study investigated the process of co-producing knowledge with young people in an adolescent health community of practice. A reflexive process supported youth and adult stakeholders to collaboratively investigate, design and pilot-test approaches that embed young people's engagement in adolescent health research. Shared values and iterative methods for co-production can assist in advancing mutual learning, commitment and trust in specific adolescent health research contexts. PUBLIC CONTRIBUTION: Young people guiding and informing an adolescent health research community of practice were involved in this study, and one of the participants is a paper co-author.
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