SynthesisInternational journal of environmental research and public health2022
The Experiences of Informal Carers during the COVID-19 Pandemic: A Qualitative Systematic Review.
Synthesis in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Experiences of Individuals With Chronic Obstructive Pulmonary Disease and Their Caregivers During the Pandemic: A Systematic Review.Nursing open · 2026Pooled it
- Unpaid caregiving and mental health during the COVID-19 pandemic-A systematic review of the quantitative literature.PloS one · 2024Pooled it
- Overburden of informal caregivers of older adults with Post-COVID Syndrome.Revista brasileira de enfermagem · 2026Article
- Quality of life and burden during the COVID-19 pandemic: a longitudinal study with family caregivers of persons living with Alzheimer's disease.Frontiers in psychology · 2026Article
- Accessing Care Across Cultures: Qualitative Insights Into the Reality of Informal Caregivers From Ethnically Minoritised Groups.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Using machine-assisted topic analysis to expedite thematic analysis of free-text data: Exemplar investigation of factors influencing health behaviours and wellbeing during the COVID-19 pandemic.British journal of health psychology · 2025Article
- Caring During COVID-19: A Study of Intersectionality and Inequities in the Care Economy in 16 Countries.International journal of social determinants of health and health services · 2025Article
- The impact of informal caregiving on the mental health of health care workers during the COVID-19 pandemic-cross-sectional and longitudinal results from the VOICE study.Frontiers in public health · 2025Article
- Neuropsychological Effects of the Lockdown Due to the COVID-19 Pandemic on Patients with Alzheimer's Disease and Their Caregivers: The "ACQUA" (Alzheimer-COVID QUArantine Questionnaire) Study.International journal of environmental research and public health · 2024Article
- Working Carers in Europe and How Their Caring Responsibilities Impact Work-Family Life Conflict: Analysis of the European Quality of Life Survey.Healthcare (Basel, Switzerland) · 2024Article
- "I couldn't say goodbye": Thematic analysis of interviews with bereaved relatives who lost their loved ones during the COVID-19 pandemic.BMC palliative care · 2024Article
- Emotional Regulation, Coping, and Resilience in Informal Caregivers: A Network Analysis Approach.Behavioral sciences (Basel, Switzerland) · 2024Article
- Family Caregivers' Experiences during the COVID-19 Pandemic: Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- Article
- "Are you listening?": Experiences shared online by family caregivers of patients in the palliative phase during the Covid-19-pandemic.PloS one · 2024Article
- Impact of a COVID-19-Related Lockdown on the Experience of Informal Caregiving in Singapore.Gerontology · 2024Article
- Quality of Life Predictors in a Group of Informal Caregivers during the COVID-19 Pandemic.Medicina (Kaunas, Lithuania) · 2023Article
- Does caring for others affect our mental health? Evidence from the COVID-19 pandemic.Social science & medicine (1982) · 2023Article
- "Palliative care is so much more than that": a qualitative study exploring experiences of hospice staff and bereaved carers during the COVID-19 pandemic.Frontiers in public health · 2023Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectivesTo identify, critically appraise and synthesise the qualitative literature on the experiences of informal carers of people with long-term conditions during the COVID-19 pandemic.
designA qualitative systematic literature review. DATA SOURCES: Eight electronic databases were systematically searched (Medline, Embase, CINAHL, PubMed, PsychINFO, Web of Science, Nursing and Allied Health and ASSIA) along with Google Scholar and handsearching via secondary sources. STUDY SELECTION: Eligible studies had to include the experiences of informal carers (adults who are 65 or older), use a qualitative methodology and had to be written in English. DATA EXTRACTION AND SYNTHESIS: Retrieved papers were quality assessed using the Critical Appraisal Skills Programme qualitative checklist and ranked for quality. Thematic analysis was used to synthesise the findings.
resultsFourteen studies were included, all from medical or nursing journals (
conclusionCarers' needs have been exacerbated by the COVID-19 pandemic. Greater practical and emotional support is needed for carers from both formal services and community sources that considers their changing needs and offers educational and emotional support for long-term wellbeing. Strengths and Limitations: (1) This is the first systematic review to explore in depth the experiences of informal carers caring for people with a range of long-term conditions and from an international context. (2) The review includes an analysis of the quality of the studies, as well as a study of their relative contributions. (3) Further research is needed to explore the physical, emotional and financial impact of the pandemic for bereaved carers which is not captured in this review due to the lack of empirical data available at the time of review.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.