Evidence map›Paper›PMID 36293582›Full record

ArticleInternational journal of environmental research and public health2022

"It Really Is an Elusive Illness"-Post-COVID-19 Illness Perceptions and Recovery Strategies: A Thematic Analysis.

Gerko Schaap, Marleen Wensink, Carine J M Doggen, Job van der Palen, Harald E Vonkeman, Christina Bode

Registry-linked trialAbstract read
In one paragraph

Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05813574 (Long Term Sequelae of COVID-19), which is not on this map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05813574 completednot on this map

Long Term Sequelae of COVID-19: Observational Cohort Study in Twente, the Netherlands

TypeobservationalSponsorMedisch Spectrum TwenteRan2020 to 2023Enrolled835ConditionsLong COVID-19, Post-COVID-19 Syndrome, COVID-19ArmsObservational patient reported outcomes
3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Patient and Professional Perspectives on Long COVID: A Systematic Literature Review and Meta-Synthesis.International journal of environmental research and public health · 2025
    Pooled it
  2. Guideline
  3. Living With Persistent Respiratory Symptoms of Long COVID: Qualitative Study Among Brazilian Adults 12 Months After Acute Infection.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  4. One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  5. Article
  6. Review
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Gerko SchaapDepartment of Psychology, Health and Technology, University of Twente, 7522 NB Enschede, The Netherlands.ORCID 0000-0003-4710-2971
Marleen WensinkDepartment of Psychology, Health and Technology, University of Twente, 7522 NB Enschede, The Netherlands.ORCID 0000-0001-5306-097X
Carine J M DoggenDepartment of Health Technology and Services Research, Technical Medical Centre, University of Twente, 7522 NB Enschede, The Netherlands.ORCID 0000-0003-4766-4333
Job van der PalenDepartment of Epidemiology, Medisch Spectrum Twente, 7512 KZ Enschede, The Netherlands.
Harald E VonkemanDepartment of Psychology, Health and Technology, University of Twente, 7522 NB Enschede, The Netherlands.
Christina BodeDepartment of Psychology, Health and Technology, University of Twente, 7522 NB Enschede, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A substantial number of patients report persisting symptoms after a COVID-19 infection: so-called post-COVID-19 syndrome. There is limited research on patients' perspectives on post-COVID-19 symptoms and ways to recover. This qualitative study explored the illness perceptions and recovery strategies of patients who had been hospitalised for COVID-19. Differences between recovered and non-recovered patients were investigated. Semi-structured in-depth interviews were held with 24 participating patients (8 recovered and 16 non-recovered) 7 to 12 months after hospital discharge. Data were interpreted using reflexive thematic analysis. Four overarching themes were identified: (I) symptoms after hospital discharge; (II) impact of COVID-19 on daily life and self-identity; (III) uncertainty about COVID-19; and (IV) dealing with COVID-19. Formerly hospitalised post-COVID-19 patients seem to have difficulties with making sense of their illness and gaining control over their recovery. The majority of non-recovered participants continue to suffer mostly from weakness or fatigue, dyspnoea and cognitive dysfunction. No notable differences in illness beliefs were observed between recovered and non-recovered participants.

Indexed as

COVID-19FatigueHumansQualitative ResearchCOVID-19illness perceptionslong COVIDpost-COVID-19 syndromequalitativerecoveryreflexive thematic analysisself-regulation model

Identifiers

PMID36293582
PMCPMC9602798

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.