ArticleInternational journal of environmental research and public health2022
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Making Sense of the Final Moments: A Qualitative Study of Informal Caregivers' Perception of Good Death in the Bereavement Process.Scandinavian journal of caring sciences · 2026Article
- Psychological Burden and Coping Strategies Among Caregivers of Patients With End-Stage Cancer.Cureus · 2026Article
- Family perceptions of the transition from hospital to home palliative care: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Palliative care conditions managed at home and self-reported challenges experienced by informal home-based caregivers in Rwanda: a qualitative study.BMC palliative care · 2025Article
- Legacy Building from the Perspective of Palliative Care Professionals in Portugal: A Qualitative Thematic Analysis.Nursing reports (Pavia, Italy) · 2025Article
- Article
- Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- Navigating toward acceptance of death: Home-dwelling patients in the palliative phase.BMC palliative care · 2025Article
- End-of-life care at home: Dignity of family caregivers.Nursing ethics · 2025Article
- Preparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- Experiences of Patients with Advanced Chronic Disease Transitioning to Palliative Care in Low- and Middle-Income Countries: A Scoping Review.Rwanda journal of medicine and health sciences · 2023Review
- When to initiate early palliative care? Challenges faced by healthcare providers.Frontiers in medicine · 2023Article
- Patients' Experiences in the Transition From Hospital to Home Palliative Care: A Systematic Review and Thematic Synthesis of Qualitative Studies.SAGE open nursingReview
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Authors and funding
8 authors.
Funding
Abstract
This study explored the meanings and experiences of patients with terminal chronic diseases and their caregivers, who face the imminence of death in the home environment after hospital discharge. The qualitative study used constructivist grounded theory. The participants were individuals with a terminal chronic illness, discharged to home, and their family caregivers. Data were gathered from in-depth interviews and field notes, and a comparative analysis was conducted to identify categories and codes, according to Charmaz's theory. The sample consisted of 21 participants. Three inter-related data categories emerged: "Floating between acceptance and resistance: Perceiving the proximity of death", "Analysing the end from other perspectives: it is in the encounter with death that life is understood" and "Accepting the path: between the love of letting go and the love of wanting to stay". The categories translate the reconstruction of those facing end-of-life occurring in the home environment. It is amid the imminence of death that life gains intensity and talking about the finitude of life configures an opportunity to see life from other perspectives. Giving voice to individuals facing the mishaps of a terminal illness fosters the path to a comfortable death. For health professionals, it is an opportunity to provide structured and humanized care with an ethical attitude, in defence of human dignity.
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