Evidence map›Paper›PMID 36291354›Full record

ArticleBrain sciences2022

Profile of Service Use and Barriers to Access to Care among Brazilian Children and Adolescents with Autism Spectrum Disorders.

Beatriz Araripe, Cecilia Montiel-Nava, Daniela Bordini, Graccielle R Cunha, Gabriela Garrido, Sebastián Cukier, Ricardo Garcia, Analia Rosoli, Daniel Valdez, Sheila C Caetano and 2 more

Open access · goldAbstract read
In one paragraph

Article in Brain sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
1.1field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 10 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 7 institutions in 6 countries.

Beatriz AraripeDepartamento de Psiquiatria, Universidade Federal de São Paulo (UNIFESP), São Paulo 04017-030, SP, Brazil.
Cecilia Montiel-NavaDepartment of Psychological Sciences, Universidad de Texas Rio Grande Valley, Edinburg, 78539 TX, USA.ORCID 0000-0002-4293-5416
Daniela BordiniDepartamento de Psiquiatria, Universidade Federal de São Paulo (UNIFESP), São Paulo 04017-030, SP, Brazil.
Graccielle R CunhaDepartamento de Psiquiatria, Universidade Federal de São Paulo (UNIFESP), São Paulo 04017-030, SP, Brazil.
Gabriela GarridoUniversidad de la República, Montevideo 11200, Uruguay.
Sebastián CukierPANAACEA, Programa Argentino para Niños, Adolescentes y Adultos con Condiciones del Espectro Autista, Buenos Aires B1640EMQ, Argentina.ORCID 0000-0002-1497-4709
Ricardo GarciaUniversidad de Chile, Santiago 8330015, Chile.ORCID 0000-0001-7157-4245
Analia RosoliOrganización Estados Iberoamericanos Para la Educacion, la Ciencia y la Cultura (OEI), Santo Domingo 10108, Dominican Republic.ORCID 0000-0002-1803-233X
Daniel ValdezFacultad Latinoamericana de Ciencias Sociales (FLACSO), Buenos Aires C1026AAC, Argentina.ORCID 0000-0001-5602-8422
Sheila C CaetanoDepartamento de Psiquiatria, Universidade Federal de São Paulo (UNIFESP), São Paulo 04017-030, SP, Brazil.ORCID 0000-0001-8403-7078
Alexia RattazziPANAACEA, Programa Argentino para Niños, Adolescentes y Adultos con Condiciones del Espectro Autista, Buenos Aires B1640EMQ, Argentina.ORCID 0000-0001-7993-2123
Cristiane S PaulaPrograma de Pós-Graduação em Distúrbios do Desenvolvimento, Centro Mackenzie de Pesquisa Sobre a Infância e Adolescência, Universidade Presbiteriana Mackenzie (UPM), São Paulo 01302-907, SP, Brazil.ORCID 0000-0003-0438-9407
Universidade Federal de São Paulo · BRFacultad Latinoamericana de Ciencias Argentina · ARThe University of Texas Rio Grande Valley · USUniversidad Acción Pro-Educación y Cultura · DOUniversidad de la República de Uruguay · UYUniversidade Presbiteriana Mackenzie · BRUniversity of Chile · CL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Delayed diagnosis and a lack of adequate care for people with autism spectrum disorder (ASD) are related to worse outcomes and quality of life. This study aimed to identify the profile of service use, barriers to access care, and factors related to those barriers in Brazilian families with children with ASD. A total of 927 families with children with ASD (3-17 years) from five Brazilian regions completed an online version of the Caregivers Needs Survey. Results showed that the most used services were behavioral interventions and pharmacotherapy, while the most used professionals were neurologists, nutritionists, speech therapists, psychiatrists, psychologists, and pediatricians. The main barriers included waiting lists, costs, and the absence of services or treatment. Service use varied according to age, the region of residence, type of health care system used, and the parents/caregivers' education. Access to behavioral interventions was more frequent among users of the private system/health insurance and families whose caregivers had higher education. The absence of specialized services/treatments was less frequent among residents of state capitals and families whose caregivers had higher levels of education. This study highlights how families with children/adolescents with ASD in Brazil face significant barriers to access care related to sociodemographic factors.

Indexed as

autism spectrum disorderchildcross-culturalhealthcare utilizationlow and middle-income countriestreatment barriers

Identifiers

PMID36291354
PMCPMC9599055
OpenAlexW4307122035

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.