Evidence map›Paper›PMID 36275920›Full record

ArticleFrontiers in rehabilitation sciences2022

Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic.

Pooja Vedmurthy, Connor Murray, Belinda Chen, Akua Asiedu, Kristin Baranano, Mihee Bay, Harolyn Belcher, Vera Burton, Charles Conlon, Amena Fine and 21 more

Abstract read
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In one paragraph

Article in Frontiers in rehabilitation sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

31 authors.

Pooja VedmurthyDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Connor MurrayDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Belinda ChenCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States.
Akua AsieduCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States.
Kristin BarananoDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States.
Mihee BayDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Harolyn BelcherDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Vera BurtonDepartment of Neurology, Johns Hopkins University School of Medicine, Baltimore, MD, United States.
Charles ConlonDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States.
Amena FineDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Ryan GillDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Jacqueline HarrisDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Khaylynn HartDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Shannon InchesDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Jennifer JohnsonDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Eboni LanceDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Paul H LipkinDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Deepa U MenonDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Tiffany McIntyreDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Meghna RajaprakashDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Albert RecioDepartment of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, Baltimore, MD, United States.
Harvey S SingerDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Lindsay SmegalDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
Constance L Smith-HicksDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Hilary VernonDepartment of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, United States.
Anna Maria Wilms FloetDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Joyce WongDepartment of Neurology and Developmental Medicine, Kennedy Krieger Institute, Baltimore, MD, United States.
Karina YelinCenter for Development and Learning, Kennedy Krieger Institute, Baltimore, MD, United States.
Mary L O'Connor LeppertDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.
T Andrew ZabelDepartment of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, United States.
Anne M ComiDepartment of Neurology, Kennedy Krieger Institute, Baltimore, MD, United States.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact. Methods: A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Data from May-December 2020 were merged with demographic information of patients from 10 clinics (Center for Autism and Related Disorders (CARD), Neurology, Epigenetics, Neurogenetics, Center for Development and Learning (CDL) Sickle Cell, Spinal Cord, Sturge-Weber syndrome (SWS), Tourette's, and Metabolism). A provider feedback survey was distributed to program directors to assess the effectiveness of this intervention. Results: Analysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 0-21.6 years). Guardians of patients in more medically complicated clinics reported perceived increased risk of COVID-19 ( Conclusion: This quality improvement project successfully implemented a pre-visit questionnaire to quickly assess areas of impact of COVID-19 on patients with neurodevelopmental disorders. During the pandemic, results identified several major areas of impact, including patient populations at increased risk for behavioral changes, sleep and/or disruptions of medical care. Most program directors reported improved patient care as a result.

Indexed as

neurodevelomental disorderspandemic (COVID-19)pediatrics - childrenrehabilitationSARS – CoV – 2

Identifiers

PMID36275920
PMCPMC9583877

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.