ArticleInternational journal of qualitative studies on health and well-being2022
An emotional roller coaster - family members' experiences of being a caregiver throughout a cancer trajectory.
Article in International journal of qualitative studies on health and well-being, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 14 citations in OpenAlex.
- Experiences of health care in family members of persons with incurable oesophageal or gastric cancer - a hermeneutical phenomenological study.BMC palliative care · 2026Article
- Patient experiences with collaborative practices between primary and specialized care in Norwegian cancer pathways: a qualitative study.BMC health services research · 2025Article
- Caregiving Burden and Coping Strategies Among Informal Caregivers of Cancer Patients in Nigeria: From Duty to Distress.International journal of public health · 2025Article
- Caregivers' demands: caring atmosphere expected by cancer patients' caregivers-a qualitative content analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- A Critical Overview of the Construct of Supportive Care Need in the Cancer Literature: Definitions, Measures, Interventions and Future Directions for Research.International journal of environmental research and public health · 2024Review
- Behind the scenes of caregiving in patients with advanced cancer: A qualitative study on family caregivers.Asia-Pacific journal of oncology nursing · 2024Article
- Lost in the loop - a qualitative study on patient experiences of care in standardized cancer patient pathways.BMC health services research · 2023Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo explore family members' experiences of caregiving throughout a cancer trajectory from diagnosis until around one year after chemotherapy and radiation treatment ended.
methodWe conducted a longitudinal qualitative study using in-depth interviews with 13 family members at one to three points of time: before, during, and after treatment. To analyse the interviews, we leaned on Braun and Clark procedure for thematic analysis.
resultThe analysis revealed three themes in family members' experiences of being a caregiver to a cancer patient throughout a cancer trajectory. These were: (1) From the time of diagnosis-overwhelming and uncertain; (2) During and after treatment-invisible and not involved; (3) Throughout the cancer trajectory-an emotional roller coaster.
conclusionThe results indicated that the family members felt invisible and not involved and they experienced being a caregiver throughout the cancer trajectory as an emotional roller coaster. Our empirical findings thus indicate that in cancer care, family perspectives are yet to be implemented in daily practice. This is in contrast to explicit goals in current health policies underlining support and involvement of family members as a core aspect in cancer care.
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Registered trials
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