ArticleJournal of clinical nursing2024
Caregiving in the COVID-19 pandemic: Family adaptations following an intensive care unit hospitalisation.
Article in Journal of clinical nursing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- The role of family caregivers in critical illness survivor recovery at home: A qualitative study.Journal of health services research & policy · 2026Article
- The interactivity and independence of Recovery challenges and coping strategies for ICU survivors and their caregivers: a systematic review and Meta-synthesis.BMC nursing · 2024Article
- Estimating the social burden of COVID-19 among caregivers of COVID-19 patients in punjab, pakistan.Scientific reports · 2024Article
- "It Isn't What I Had to Do, It's What I Get to Do": The Experiences of Black Family Caregivers Managing Dementia.Journal of family nursing · 2024Article
- Experiences of family caregivers of nurses infected with COVID-19: a qualitative study.BMC nursing · 2024Article
- Family caregiver experience of caring COVID-19 patients admitted in COVID-19 hospital of a tertiary care hospital in Nepal.PloS one · 2024Article
- Caregiving in the COVID-19 pandemic: Family adaptations following an intensive care unit hospitalisation.Journal of clinical nursing · 2024Article
- Barriers to and Facilitators of Family Caregiving of Patients With COVID-19 Early in the Pandemic.American journal of critical care : an official publication, American Association of Critical-Care Nurses · 2023Article
- Maximizing the Benefit of Respite for Dementia Caregivers: A Study Protocol Describing the Development & Evaluation of the Time for Living & Caring (TLC) Intervention.OBM integrative and complimentary medicine · 2023Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
AIM AND
objectiveTo identify how family caregivers adapt to the caregiving role following a relative's COVID-19-related intensive care unit (ICU) hospitalisation.
backgroundFamily caregiving is often associated with poor health amongst caregivers which may limit their capacity to effectively support patients. Though severe COVID-19 infection has necessitated increasing numbers of persons who require caregiver support, little is known about these caregivers, the persons they are caring for, or the strategies used to effectively adjust to the caregiving role.
designA qualitative descriptive study design was adopted, and findings are reported using COREQ.
methodsA secondary analysis of transcripts from semi-structured interviews conducted with recently discharged ICU patients who had COVID-19 (n = 16) and their family caregivers (n = 16) was completed using thematic analysis. MAXQDA 2020 and Miro were used to organise data and complete coding. Analysis involved a structured process of open and closed coding to identify and confirm themes that elucidated adaptation to family caregiving.
resultsSix themes highlight how family caregivers adapt to the caregiving role following an ICU COVID-19-related hospitalisation including (1) engaging the support of family and friends, (2) increased responsibilities to accommodate caregiving, (3) managing emotions, (4) managing infection control, (5) addressing patient independence and (6) engaging support services. These themes were found to be congruent with the Roy adaptation model.
conclusionsFamily caregiving is a stressful transition following a patient's acute hospitalisation. Effective adaptation requires flexibility and sufficient support, beginning with the care team who can adequately prepare the family for the anticipated challenges of recovery. RELEVANCE TO CLINICAL PRACTICE: Clinical teams may improve post-hospitalisation care outcomes of patients by preparing families to effectively adjust to the caregiver role-particularly in identifying sufficient support resources. PATIENT OR PUBLIC CONTRIBUTION: Participation of patients/caregivers in this study was limited to the data provided through participant interviews.
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