ArticleJournal of bioethical inquiry2022
Better Regulation of End-Of-Life Care: A Call For A Holistic Approach.
Article in Journal of bioethical inquiry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed.
- Evaluating Experiences With the Newly Enacted Law on Assisted Suicide in Austria: Protocol for an Interdisciplinary Mixed Methods Study.JMIR research protocols · 2026Article
- Institutional Responses to Voluntary Assisted Dying: An Empirical Study in Victoria and Western Australia.Journal of bioethical inquiry · 2025Article
- Sustaining the workforce: a qualitative study exploring voluntary assisted dying supports and self-care.Internal medicine journal · 2025Article
- Key challenges in providing assisted dying in Belgium: a qualitative analysis of health professionals' experiences.Palliative care and social practice · 2025Article
- Medical assistance in dying in Canada: A review of regulatory practice standards and guidance documents for physicians.Palliative care and social practice · 2025Article
- Patients' and Caregivers' Suggestions for Improving Assisted Dying Regulation: A Qualitative Study in Australia and Canada.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Registered Nurses' beliefs about end-of-life care: A mixed method study.Nursing open · 2023Article
- Online modules to improve health professionals' end-of-life law knowledge and confidence: a pre-post survey study.BMC palliative care · 2023Article
- A qualitative study of experiences of institutional objection to medical assistance in dying in Canada: ongoing challenges and catalysts for change.BMC medical ethics · 2023Article
- The impact on patients of objections by institutions to assisted dying: a qualitative study of family caregivers' perceptions.BMC medical ethics · 2023Article
- Practitioners' experiences with 2021 amendments to Canada's medical assistance in dying law: a qualitative analysis.Palliative care and social practice · 2023Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Existing regulation of end-of-life care is flawed. Problems include poorly-designed laws, policies, ethical codes, training, and funding programs, which often are neither effective nor helpful in guiding decision-making. This leads to adverse outcomes for patients, families, health professionals, and the health system as a whole. A key factor contributing to the harms of current regulation is a siloed approach to regulating end-of-life care. Existing approaches to regulation, and research into how that regulation could be improved, have tended to focus on a single regulatory instrument (e.g., just law or just ethical codes). As a result, there has been a failure to capture holistically the various forces that guide end-of-life care. This article proposes a response to address this, identifying "regulatory space" theory as a candidate to provide the much-needed holistic insight into improving regulation of end-of-life care. The article concludes with practical implications of this approach for regulators and researchers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.