Evidence map›Paper›PMID 36244981›Full record

ArticleBMC palliative care2022

Expert survey on coverage and characteristics of pediatric palliative care in Europe - a focus on home care.

Julia Wager, Larissa Alice Kubek, Maria Brenner, Sara Calmanti, Carmel Doyle, Malin Lövgren, Ulrika Kreicbergs, Leontien Kremer, Philippe Le Moine, Guillaume Robert and 4 more

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In one paragraph

Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Julia Wager *PedScience Research Institute, Herdieckstraße 5b, 45711, Datteln, Germany.
Larissa Alice Kubek *PedScience Research Institute, Herdieckstraße 5b, 45711, Datteln, Germany. l.kubek@pedscience.de.
Maria BrennerSchool of Nursing, Midwifery & Health Systems, University College, Dublin, Ireland.
Sara CalmantiAccompagnement Et Information (CREAI) en Faveur Des Populations Vulnérables, Centre Régional d'Etudes, Bretagne, France.
Carmel DoyleSchool of Nursing and Midwifery, Trinity College, Dublin, Ireland.
Malin LövgrenMarie Cederschiöld University SE, Stockholm, Sweden.
Ulrika KreicbergsMarie Cederschiöld University SE, Stockholm, Sweden.
Leontien KremerPrincess Máxima Center for Pediatric Oncology, 3584 CS, Utrecht, The Netherlands.
Philippe Le MoineEquipe Ressource Régionale de Soins Palliatifs Pédiatriques La BRISE, Bretagne, France.
Guillaume RobertEquipe Ressource Régionale de Soins Palliatifs Pédiatriques La BRISE, Bretagne, France.
Meggi Schuiling-OttenDutch Center of Expertise in Paediatric Palliative Care, Utrecht, The Netherlands.
Peter Schröder-BäckDepartment of International Health, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.
Eduard VerhagenDepartment of Pediatrics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
Boris ZernikowPedScience Research Institute, Herdieckstraße 5b, 45711, Datteln, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFor children with life-limiting conditions home care is a key component of pediatric palliative care. However, poor information is available on service coverage and in particular on country-specific pediatric palliative home care characteristics. The aim of the study was therefore to describe the association between pediatric palliative care coverage and national activities and obtain detailed information on the pediatric palliative home care structure in different European countries.

methodsOnline survey with in-country experts from N = 33 European countries.

resultsPediatric palliative home care (65.6%) represented the most pediatric palliative care units (15.6%) and the least common services. National documents constituted the most widespread national pediatric palliative care activity (59.4%) and were associated with available services. Pediatric palliative home care could be mostly accessed as a service free of charge to families (95.2%) from the time of a child's diagnosis (85.7%). In most countries, oncological and non-oncological patients were cared for in pediatric palliative home care. Only a minority of home care teams covered home-ventilated children. Pediatric palliative home care usually comprised medical care (81.0%), care coordination (71.4%), nursing care (75.0%) and social support (57.1%). Most countries had at least two professional groups working in home care teams (81.0%), mostly physicians and nurses. In many countries, pediatric palliative home care was not available in all regions and did not offer a 24 h-outreach service.

conclusionsPediatric palliative care provision in Europe is heterogeneous. Further work on country-specific structures is needed.

Indexed as

Home Care ServicesPalliative CarePediatricsChildEuropeHealth Care SurveysHumansEuropeHealth care quality, access, and evaluationHome care servicesPalliative carePediatrics

Identifiers

PMID36244981
PMCPMC9575204

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.